Some advice: Hi all,i have lupus for 12 years which... - LUPUS UK

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Some advice

Amber15 profile image
6 Replies

Hi all,i have lupus for 12 years which affected my kidneys leaving me with only 19 percent renal function which leaves me tired a lot of the time.I would like to go back to work and see if I am able to a days work.Worried I could lose my dla .Could anyone give me some advice.

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Amber15
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misty14 profile image
misty14

Hi Amber

Sorry to read Lupus has affected your kidneys so much!. Just to let you know that DLA is payable according to how your illness affects you on a daily basis. You can work if you can but if you can't you won't lose it. Any other benefit or work advice you might need I can recommend you contact your local Citizens Advice Bureau or look at their good website. Hope that's put your mind at rest?. X

Amber15 profile image
Amber15 in reply to misty14

Thanks Misty,I will check things out and maybe I will get back into work.

Paul_Howard profile image
Paul_HowardPartnerLUPUS UK

Hi Amber15,

If you are looking at returning to some work then I would make an appointment with a Disability Employment Advisor. They offer specialist support to people with disabilities who need employment advice. You can find one at your local Jobcentre Plus.

You may also like to take a look at our booklet, 'I want to work - a self help guide for people with lupus'. It contains a lot of useful information and advice. You can view it online at lupusuk.org.uk/living-with-...

Amber15 profile image
Amber15 in reply to Paul_Howard

Hi Paul is that the Condition Managememt Programme .I also would like to ask if I can still get dla.x

Paul_Howard profile image
Paul_HowardPartnerLUPUS UK in reply to Amber15

I'm afraid I'm not familiar with the name of any programmes they might offer.

charm81 profile image
charm81

Working doesn't affect DLA. It isn't classed as an income but extra money as a direct affect your illness has on your day-to-day living. I worked and received DLA for many years until my renal failure so I wouldn't worry about that part. You're likely to need DLA more now due to the symptoms of your deteriorating kidney function.

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