Hi.. iv read most of the recent posts and really hope everyone feels better xx
I couldn't reply due to my lack of knowledge/experience
But really hope the time to come is much easier
I was diagnosed in may this year with SLE lupus. i feel like iv learnt to cope recently
Only because of the lack of understanding of other people towards me..
In may i couldn't walk due to swelling and pain around my body..
It was quite serious
Now with the help of my medication, i am better than before
However, i still have alot of pain and fatigue. . I went to see my rheumatologist last week.. i had sharp pains around my body.. like electric shock.. (pain lasts for few mins then goes)
The response was 'atleast youre recovering and are better then before. Considering you can walk now.. its normal to have pains with this horrible disease'
I was left speechless because if its normal.. does that mean i have to live with these kind of pains all my life.. im 21
I felt like he thought i was attention seeking or not being able to cope
Therefore, i have learnt that there are only a few people who understand.. and i dont like to moan but he made me feel lonely...like no one to turn to for help. So from last week i decided i will just keep all the problems to my self.. at least i wont feel like iv been put off.. not sure if that is a good idea but oh well
sorry for the moan xx