I am 23 years old, have lupus and Sjogrens syndrome and was diagnosed at the age of 18 (although I believe that I have had it for many years prior to that).
Recently, I am feeling a real sense of injustice and loss for a life that I should have had. This is made worse by the fact that I have never been offered any help or support by health professionals.
I'm just wondering whether anybody else feels like this? I often fear that this is it for the rest of my life and worry that I will never have a child or 'normal' family life.
I am struggling at the moment and just wondered whether anyone else feels like this and what they do to bring themselves round?