September's Blog (Part 2) - Heidi's experience of pregnancy with lupus

September's Blog (Part 2) - Heidi's experience of pregnancy with lupus

Continuing with our topic for September and October - lupus and pregnancy - Heidi has written about her pregnancy. Thank you Heidi for taking the time to write this for us.

I had a fantastic pregnancy; it was the best I have felt in years! I was so worried that I would have problems conceiving or even worse face miscarriages following my diagnosis of systemic lupus in June 2012. Luckily I managed to get my symptoms well under control by September 2013 and my rheumatologist gave me and my husband the nod to start trying; luckily we caught straight away.

All of a sudden my hair was thickening, my joints were ache free and I had lots of energy! I maintained the medication I was on prior to pregnancy (steroids & Hydroxychloroquine mainly, having stopped azathioprine 6 months prior to trying for a baby). I was seen every four weeks at the hospital to monitor my pregnancy closely. They gave me aspirin and a blood thinning injection to take daily during pregnancy and for 6 weeks after. I also had regular scans to check my baby's growth and blood flow.

I had my gorgeous son, Logan, on the 6th of June at 39 weeks and 1 day. The hospital was great and he was delivered by forceps after a slightly tricky labour due to his heart rate dropping throughout - however he is perfect.

He is now 13 weeks and I can say I love being a mum. Unfortunately since giving birth I have been flaring; my main symptoms are tiredness, hair loss and aches. The hospital has upped my meds, but I'm still having the symptoms. After feeling so good for 9 months it's a pain, but I look at my son and it's all worth it, hopefully if I'm lucky enough to have another in the future I will have the same luck and feel great again!

If you would like to share your experiences of your pregnancy for our blog next month, please email

Further information about lupus and pregnancy can be found in our factsheet, which is available to read at


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