Hi all, as you know my diagnosis currently is UCTD. However, my wrists and fingers have been particularly painful and stiff for weeks now and I find it difficult to do some household chores and to function to do my job. Also, I am having surgery next month on my right shoulder - i had the same on my left last year....no one can tell me whether it is systemic problem or not (sub acromial decompression / bursitis and calcific tendonitis).
As I have posted before, I have been on plaquenil for 18 months now and I seem to be more and more sensitive to light where my face and neck both flush red after being on the computer.
Then last week I was in the sun for 10 mins and by the weekend I had come out in a rash all over my face and neck...like a prickly heat / many hundreds of little tiny blisters under the skin type of rash.
I was feeling so upset as I had a very special family gathering at the weekend and it was so evident on my face and very itchy. My grown up daughters were kind and loving as usual which helped me.
The rash is calming now but my GP advised an antihistamine, and staying out of the sun and using SPF factor 50 if I must go out in it at all.
I feel all of this is now rather like fighting the tide. I am so frustrated that my rheumatologist just suggested stepping up the plaquenil to twice a day during a flare!
But with negative blood results, I feel I am getting nowhere fast.