Hey im new on here, i am a LUPUS SLE sufferer, if... - LUPUS UK

LUPUS UK

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Hey im new on here, i am a LUPUS SLE sufferer, if you can relate to me or my conditions, please message me.

Maximilian profile image
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Maximilian
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Natura profile image
Natura

Welcome Maximilian...I find this site very helpful. I have been recently diagnosed as well. A lot of knowledgable and caring people! Hope you are feeling ok...

Maximilian profile image
Maximilian

Hi Natura,

I was diagnosed at the young age of 18 so ive tolerated with it for 15 years but have found that with the coming of age i have collected further diagnoses with lupus. but im managing well - just nice to be able to speak to fellow sufferers and not suffer on my own.

Natura profile image
Natura in reply to Maximilian

Glad u r managing....good to hear...feeling ok myself today...

Hi Maximillian, I joined last November. I have sle and a collection of other lupus connected problems. It is a very good and informative site, with a whole variety of lupus sufferers. The Drs should read this forum, as they might learn a thing or two. Any worries or meds related questions, just ask and I'm sure someone will give their opinion. There are other males on here, so you are not alone. Take care.

madmagz profile image
madmagz

Hi welcome from another fellow lupie, I have been diagnosed for nearly twenty years now and it has been quite a roller coaster journey this site has certainly been a Godsend I wish it had found it sooner. The site has been a great comfort knowing that if the docs don't help I can generally come on here and find someone who has been through the same as me and give me advice, it is sometimes the first stop before asking a doctor. It is also nice to offer words of comfort to those going through a difficult time when we have been there ourselves as we know that we genuinely care and know how it actually feels to be in the situation.

Glad you are managing well at the moment I hope it lasts

Madmagz x

Bonnie39 profile image
Bonnie39

Hello. I was diagnosed last summer but am still learning and still waiting for proper meds. I also have APS and now lupus nephritis it would seem. I am very glad of this site!

Paul_Howard profile image
Paul_HowardPartnerLUPUS UK

Hi Maximilian. Welcome to the community. I'm sure you'll find plenty of people that can relate to you here. If you need anything, let me know.

Paul

LUPUS UK

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