Why am I not able to remember what things are, th... - LUPUS UK

LUPUS UK

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Why am I not able to remember what things are, the names of them, and when I talk to someone, I can't think of the right words, stomach pain

Alfie1974 profile image
4 Replies

So much stomach pain, and the joint pain and, I can just go on and on, so much I am going through and I have no dr or insurance, and I just want a friend who's going through the same things, and a lot of it I do not know about or understand, please contact me back, and I thank you from the bottom of my heart...Alfie

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Alfie1974 profile image
Alfie1974
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4 Replies
dgleds profile image
dgleds

I get stomach issues from my medication plaquinil that I take for lupus..also if I take non steroid anti inflammatories..even if I take with milk or food..

My brain is kinda fuzzy from I guess lupus...

joint pain come and goes for me...

my hearts been doing twinges, so im getting an ecg on Monday..and more blood tests...

so u have no doctor? I dont have a steady doctor...

SarahHeney profile image
SarahHeney

Are you on Facebook Alfie? Lupus UK have a page with over 5000 members which is well run and more of a chat forum. Or if you are in America they slso have similar groups on Facebook. Just s thought as it sounds like you vould do with some friends with lupus.x

daisyd profile image
daisyd

Morning sorry about how poorly you feel as I have mentioned in other posts, please see the Healthunlocked site on Hughes syndrome, regarding memory problems

Carcrashgal profile image
Carcrashgal

'Use a noun!' is my husband's most common phrase these days - he knows I just can't remember words sometimes (and me a writer and publisher!) and it's *so* frustrating for both of us. Alfie, sounds like you need someone to talk to who's going to understand this hateful disease - this forum's great at that too as we're all going through variants of the same thing. But it also sounds like you definitely need a medic - where are you? And you might find books like Talking About Lupus by Triona Holden useful. GrandmaCarol's right too: rest up, and don't try to do too much. It sounds trite, but there will be good days and I think we all live for them! Hang on in there. Jo

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