Hiya fellow lupoids! Just 2 let everybody know, yes, I am still hanging around making a nuisance of myself & generally challenging ( ok, arguing with ) my medics when they try & do this, that & the other (I wouldn't b myself otherwise!) & apart from frequent really bad heads & constant MCT pain, I'm not too shabby
I HAVE had a quick gander at the forum (I am no longer a volunteer, boo hiss!) & I must say I'm either being totally & utterly stupid or either suffering really badly from being a ditzy blonde lupoid but I can't seem 2 get my head around this whole new layout etc. I can't find my friends!!!!!!!!!
Hoping 2 check in more regularly again now that this month is almost over (this is a funny month 4 me, it signals the point of my health coming 2 a head, dying, the death of some extremely close loved 1's & also many birthdays so I struggle with my emotions every September) just as long as I can work out what the chuff I'm doing Big love 2 all x
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Sher78
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Hi I am new to all this but do find forum bit confusing to just post an update or reply to the lovely people who replied to me...its a great source of info though and im sure I will get used to it soon. Sorry to hear you having tough month. Big hug
Hi sher, it's good to see you back. It took me a while to get used to the new layout too. But I am a major technophobe, as you know from my attempts to post links in the past! Take care, my dearie. X
Hiya fudge & welcome 2 u (although I'M the 1 that feels 'new' lol!). Frog, roobarb, pattismith, SO nice 2 c some familiar names & pics pop up, I thought every1 had buggered off & got cured without me x
Hooray! was wondering the other day were you'd gone Sher78. I can relate to you when you say September is not a good month for you, I do not look forward December as a lot of tragedy happened for our family then. Yes this site, I am not keen on, have had to put questions on the site cos I couldn't find my previous blogs as they used to be called and questions duh! luckily Paul put me right. So missed your hilarious way of putting things into words, and so relieved that you have not been on the site because of major health issues.
aw thanks caz59, it's lovely 2 c all these familiar names pop up Been concentrating on my FB page in between taking lots of kips but once I've sussed out what I'm doing on this site I shall b telling u all about the many aphids I encounter (as u all well know muppets seems 2 fall in2 my path quite regularly ) x
Hiya Purpletop, glad 2 c u're still milling around the boards
Unfortunately not, 'Mr. Fantastic' hasn't got the faintest chuffing idea what he's looking 4 so has decided he needs 2 do more research & confer with Haemo & Neuro b4 he comes up with a 'Plan of action'. $ chuffs sake, just give me the bloody biopsy & save us all a bit of time! Yes, I am still loving my Rheumy muchly & have a fantastic rapport with him x
2 my knowledge I think there r literally only a couple :/ Sods law I guess but saying that, there weren't many rheumy's 15 years ago that really knew much about lupus so I live in hope Comes & goes, I have been running my INR slighter higher & this seems 2 help with the hallucinations & 'hormonal episodes' (as my rheumy calls them. Hmmm, wonder if he'd still call them that if I went off on 1 in his presence?). Also had my anti-psyches changed again but neuro wants me 2 go back & have retests etc 2 c if there's a difference in the sets of results so just gotta wait 4 them 2 sort that. Will talk 2 neuro about sneddons & also haemo when I c them. How u doing chicky? x
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) my medics when they try & do this, that & the other (I wouldn't b myself otherwise!) & apart from frequent really bad heads & constant MCT pain, I'm not too shabby 
Still trying 2 get my little ol' head around all this new fandangled malarkey on here 
Problems with getting blood from my veins any reasons why. is it lupus or something else. 
How to cope with the waiting?
Exhausted, dizzy and out of breath
Second Opinion Next Week 😓
No diagnosis wanted, can't do this, going insane!
