Lupus and pre-menstrual flares


Just wanted to say I have written a short blog post on my website regarding lupus and premenstrual flares

I often get quite ill, with fevers and intense joint pain, for the 4 days before my period and I wanted to find out if there was any research in the area. Apparently it is very common to have pre-menstrual flares. I've become used to it now after 10 years. For me it helps to know these things as it means I can plan more - and make sure that I have nothing high-pressure or stressful in my diary at that time. I think this kind of knowledge is empowering and helps me to get the best out of my life.

All the best

Ani x

9 Replies

it is a known fact that changes in hormones can affect the path of lupus ... hence when pregnant the disease can go into a dormant state or indeed that is when it will be diagnosed. What is commonplace for one person may not be for another, that is how individual lupus can be.


It's good to know that other people are experiencing the same thing as me,hoorah,I'm not going mad!!!!

Am pre-menstrual at the moment and the fatigue/foggy brain/joint pain are so much worse. My partner is keeping well out of the way!!!!!!

Reply are definitely not alone!! When I am premenstrual I stay very quiet and keep to myself a lot. I always let my husband know and he tends to be much more 'gentle' in the 4 days before my period....he understands why I keep myself quiet and knows that it means I am in pain. For me, knowing that it passes by in 4-5 days helps me to stay positive.

I hope that you feel better in a few days time

Sending hugs

Ani x


Hi... Yes I always get a flare each month for the few days before and during my period. I have found that taking a few drops of Agnus Castus every morning in water has helped to stabalise my moods and nervous system so that emotionally I am better able to deal with it. I wouldn't recommend taking herbs unless you've visited a trained herbalist first though -and discussed it with the rheumatologist. Like you, it also helps to tell my husband (and kids) so they can be extra gentle with me at that time!!!


Good to hear that I'm not imagining it. My consultant has put me on a constant course of the mini pill to see if stopping my periods altogether makes a difference. I've done one month but he reckons it will take three to kick in. Will keep you posted. One question I had was that I have heard that symptoms improve after the menopause, I am 46, how will I know when I have the menopause? Answer was - I probably won't.



Hi Jax

I too am looking forward to the menopause (!) as I am hoping that monthly spike of fever and sweats, joint ache and mood swings will disapate. I was at my wits end so my GP prescibed a low dose of anti-depressants to take the edge of it. For me this has worked but like you am hoping for menopausal relief!!!!




I have felt like i feel worse when iam on my period i feel so sore and very tired and just feel like doing nothing and my moods change fast. I thought it was just me.


hi i too suffer with lupus flares around my menstrual cycle every single month with increased fatigue and joint pain yet when i mentioned this to my gp he totally dismissed it and said there is no evidence of any links to flares around menstrual cycles !!!!!!!!!!!! erm duh !!!!!!!! was i myself not evidence enough sat in front of him describing the link to him !!!!!!!!!!!!!!!!! but hey what do i know i only have to live with this illness every single solitary day of my life !!!!!!!!!!!!!!!


There are definatly links to hormones and Lupus Flares ... I suggest you get another GP or all of us on here go visit him lolol ...


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