Hydroxychloroquine: Having taken this medication... - LUPUS UK

LUPUS UK

32,241 members28,596 posts

Hydroxychloroquine

Binkey profile image
5 Replies

Having taken this medication now for about six month's I am almost certain it attributes to the paranoid feeling's.I can't wait to speak to reumatology about this.I won't stop this medication until I have spoken with them.My GP know's there is a possible link and suggest's I speak to reumatology(pass it back to them)about this problem.I now have blister's on my tongue,having just got rid of the mouth ulcer's.I suppose we have to weigh the good with the bad.

Written by
Binkey profile image
Binkey
To view profiles and participate in discussions please or .
Read more about...
5 Replies
Lupoid profile image
Lupoid

It's not one I've personally heard of - paranoia with hydroxychloroquine - I do know, however, that paranoia is quite a common symptom in Lupus patients. Paranoia along with other symptoms (headaches, fits, depression, movement disorders and other psychiatric disturbances) could be an indication of further lupus involvement or an involvement of Hughes Syndrome.

It may be useful to read the lupus uk factsheet - Lupus and the Brain - lupusuk.org.uk/factsheets/l...

It may jog your memory if there's is anything you have disregarded but I would imagine it would certainly be useful reading prior to approaching your Rheum (it could also be good reading for your GP).

ChocolateTeapot profile image
ChocolateTeapot in reply toLupoid

Dear Lupoid

Thank you for the link to the factsheet about Lupus and the brain. I have very recently experienced the jerky head movements described in the fact sheet and found it very worrying. I will take this sheet along when next speaking with my GP and specialist.

Thanks

Denevs profile image
Denevs

When I had mouth Ulcers etc, I was prescribed Difflam Mouthwash. This was a great help. You might want to ask your GP to prescribe it to you.

Denevs profile image
Denevs

Meant to add that I am on Hydroxychloroquine

at present and this is to help my liver recover. I have had no paranoia feelings. Although, I do get down a lot.

chrisj profile image
chrisj

I can recommend Difflam as well, been using it for quite some time and it really helps with mouth and tongue sores..My dentist prescribed it for me.

No paranoia from hydroxy either...in fact I've felt better mentally since I've taken it. I do get very depressed at times but I've learned to live with that..

Not what you're looking for?

You may also like...

MENSTRUAL ISSUES - HYDROXYCHLOROQUINE

A BIG HELLO to all you lovely people. I have been a member here for a while but have not posted...

Hydroxychloroquine

As anyone who takes this medication knows, we are advised to have yearly eye tests, so, as...
Angiedj profile image

Hydroxychloroquine

Seen my Rheumy today and defo have Lupus, he wants me to think about whether I should take...
jackjack2 profile image

Hydroxychloroquine

I just started on Hydroxchloroquine 200mg twice a day. I have only been on it for two days but I...
Poohbear3053 profile image

Hydroxychloroquine

I have been on 1 a day hydroxy for a week.I am supposed to increase this to 2 daily but,they...
Binkey profile image

Moderation team

See all
Debbie_kinsey profile image
Debbie_kinseyAdministrator
chelseawong profile image
chelseawongAdministrator
michaellasmith profile image
michaellasmithAdministrator

Top community tags

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.