Hydroxychloroquine supplies: Hello all, Is anyone... - LUPUS UK

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Hydroxychloroquine supplies

smudge profile image
6 Replies

Hello all,

Is anyone else still having problems with Black Rock supplies?

I haven't had any for 3-4 months now, some places can get hold of 300mg but I'm on 200mg. Thankfully I reduce my prescription over time from 400mg to 200mg per day earlier this year so I have a little bit of a supply but, before too long I will be stressing and making myself ill....what an absute nightmare. I keep getting palmed off with other brands that I have issues with too.

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smudge
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6 Replies
Cottar profile image
Cottar

Hi Smudge, I can’t get Blackrock 200mg either so my prescription has been changed to 300 mg after I talked to my Rheumatologist. Like you, all the other brands have nasty side effects for me, something to do with the fillers used, so it is a worry isn’t it. Anyway, I’ve been on 300 for a fair few months now and seem to be doing ok, just hope it doesn’t affect my eyes.

Do try not to worry, not good for us is it? Have you got a helpline you can contact for your Rheumatologist? I’ve found them to be very responsive, helpful and reassuring.

You take care 😀

smudge profile image
smudge in reply to Cottar

I spent the past year reducing down from 400mg to 200mg per day so don't really want to increase again. I will keep chasing and may even contact the company to enquire about supplies. Yes I can contact my Rheumatology team to see what they advise.

Pickzie profile image
Pickzie

I can get 200mg tabs fine. I’m not sensitive to brands though so take whatever is supplied

Poshcards profile image
Poshcards

I can only take Zentiva and I cannot or my GP get them anywhere in mine or neighbouring regions! it really stresses me out each month x

dg70 profile image
dg70

I hate reading all this again. I'm dreading my next Zentiva chemist ring round which is due next month. So sorry you can't get Blackrock. Have you tried Zentiva, they usually come in 200mg and are similar make up I understand to Blackrock? Although good luck getting them as again they are more expensive than any Quinoric brand like Bristol labs so they are not ordered in so much by the warehouses. They are, however, cheaper than Blackrock I think so may be slightly easier to get.

smudge profile image
smudge in reply to dg70

I have tried Zentiva but I don't get on with that brand, Blackrock is better for me. It is a nightmare and stressful for everyone.

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