Frustrated

Hi I am new to group am 45 yrs old and suffer frm Lupus Rhumatoid artritis.connective tissue to name a few.I recently been diagnosed with hasmotos n been put on 50 mg eltroxin which about killed me first few days in.So my thyroid isnt working at all n told this is why im gaining weight.I cannot handle the weight gain as my feet are the worst n hurt me constantly.Never no relief frm foot pain.Now 6 mnths ago I had reconstructive foot surgery n since surgery I now have something seriously wrong w lower spine that never had prior to having done.mri showed ostio n bulged disc n nerve exposed at l1ns5.so wen i sit for any period of time i can barely stand up n pain is excrushiating.im on 3 percocet a day n have a pain tolerence thT isnt even normal.so when i say im hurting n in cronic pain,im in major pain.my dr.refused to increase my pain med.or put me on something stronger.I think its down right crewl for one to suffer in extream pain like this.its enuff to make u go crazy in ur head.im seeing a new rhumatoligest in three days n hopefully he will help me or i dont know what im going to do because living dailey in this shape is totally wrong n then when u tell them they make u feel like a drug attic.so heres hoping someone can help me to make them understand.thks tammy

4 Replies

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  • Dear Tammy,

    Welcome to LUpus Patients Understanding & Support (LUPUS) at HealthUnlocked.

    Some families have more than their fair share of autoimmune diseases and you seem to have been very unlucky in having several!

    The pain you are describing from your lower spine IS excruciating as I have also had severe spinal inflammation and a major operation.

    You might not think so, but Percocet is excellent for acute pain. For chronic pain, there are slow release drugs that work for 12 hours. Therefore,one needs to take 2 of these. However, this is for your doctor to discuss. Percocet is not slow release and therefore when its effects wear off, you are in pain again. Please return to your doctor and ask for chronic pain relief as well.

    I hope your appointment goes well. Please let me know what hppens with your new rheumatologist.

    We also have another website called the LuPUS Message Board where you can also post questions and talk to other people. Registration is FREE and we offer free information and free online psychological support. We specialise in psychological support with our own counsellor/psychotherapist available.

    By becoming a Member, you will have access to the private forums and because they are private, only Members have access and even bots and search engines are forbidden.

    When you register, please use the following format for entering your date of birth: nn-nn-nnnn where n=number. Please use the "-" separator and not "/".

    Finally, please go to: lupus-support.org/LuPUSMB and Sign Up.

    I look forward to talking with you more!

    Sometimes we need to talk to people who understand and who are not family or friends.

    With good wishes!

    Ros

    Disclaimer: No attempt is made to diagnose or to make any medical judgement. You are advised to seek the advice from your own physician. LUpus Patients Understanding & Support (LUPUS) is not a substitute for your own doctor.

  • Thank you for ur response.

  • Tammy, It is cruel to leave someone in pain. You are right. To start, my feet hurt so bad I can't walk in the morning until I get special shoes on, and also had a foot surgery that made it worse. I have a terrible spine also and for surgery they want to put a rod all the way up my spine. I would be unable to bend over. So I go to a very good Pain Management clinic. You need to find one where they don't make you feel like you are addicted, but where you are in less pain. As my doctor said, It will never be completely gone, but they work to make it tolerable. I love and appreciate them. 

    Find the right place and don't let any doc make you feel you are a terrible person.

  • Thanks secretly dissabled.I was wondering about a pain clinic?shoul i ask gp about sending me to a pain clinic.I cannot handle feeling this way frm morning to nite.Not being able to do anything or get anything accomplished.Its depressing n the inflamation is outta control.fed up n have no clue were to turn next.?

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