persistent pneumothorax : I finally had... - The Roy Castle Lu...

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persistent pneumothorax

kri312 profile image
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I finally had my procedure last Wednesday due to uncertain recent pet /ct changes ( had r lower lobe lobectomy and r upper wedge 5 1/2 years ago) at the scar site of upper. Bronch was completed with insignificant findings but Tumor board recommended to go in for surgery. Great news following surgery was that it was all benign and no cancer found- thickening at sturgeon line. He had to take a small piece of the the remaining r upper via vats and chest tube was inserted. Small pneumothorax noted and was unsuccessful trying to remove it to Heimlich valve over the weekend. Concerned that the pneumothorax is not resolving and what next steps would be. Do have subcutaneous emphysema as well. What happens if the pneumothorax doesn’t resolve ? Team mentioned over the weekend the challenge since I really only have middle lobe and part of upper left. Waiting for my doctor. Was so relieved and now anxiety has spiked again.

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kri312
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RoyCastleHelpline profile image
RoyCastleHelplinePartnerAsk the NurseRoy Castle

Dear Kri312

Sorry to hear of your persistent pneumothorax, this can happen for some people and it sometimes requires a prolonged time with chest drainage, along with complex management. It is understandable your anxiety with this and what happens next.

It sounds like you have a very good respiratory team looking after you and hope you have some answers and treatment soon.

You may wish to also contact the respiratory nurses at Asthma and Lung UK : asthmaandlung.org.uk/ their helpline number is 0300 222 5800 or their email is helpline@asthmaandlung.org.uk or Whats app them on 07378 606 728

You are welcome to contact our ask the nurse at lungcancerhelp@roycastle.org or call our free phone helpline number on 0800 358 7200 Monday to Thursday 0900-1700 and Friday 0900-1600

kri312 profile image
kri312 in reply to RoyCastleHelpline

What type of complex management? Is it realistic to think it can resolve ? Minimal to no drainage -

RoyCastleHelpline profile image
RoyCastleHelplinePartnerAsk the NurseRoy Castle in reply to kri312

Hi Kri312

The complex management would involved suction and perhaps the need to reposition the chest drain tube. Sometimes, surgical management is used and I assume that is what they will be going to discuss with you. You have mentioned that they tried the Heimlich valve to address this, however, equally, a small pneumothorax has the potential to resolve itself but from what your team says it is for the consultant to decide on the next treatment plan.

Do have a chat to the respiratory nurses at Asthma and Lung UK as they may have more information directly with your query.

I hope this helps and you feel better soon .

The Roy Castle Support Team

kri312 profile image
kri312 in reply to RoyCastleHelpline

Waiting to see the doctor today and hoping surgery is not needed. I also don’t want to go home prematurely and then have to come back in. Frustrating because I feel really good.

RoyCastleHelpline profile image
RoyCastleHelplinePartnerAsk the NurseRoy Castle

HI Kri312

That is encouraging that you do feel good, hopefully they may decide to allow it to resolve or if intervention is needed, it is done quickly so you do not have to go back in.

The waiting is always the worst part for these things and am sure the day feels long already. Hoping the best for you.

The Roy Castle Support Team

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