I am new to this site & would welcome any of your assistance for questions please

[ArtHopeLove]

Morning x I am new to this site & thank you for sharing your stories. My husband is 59 & we’re attending our consultation tomorrow morning for hopefully treatment available to him. He has a shadow on right lung & leg pain plus a few flecks. He had the bronchoscopy & endoscopy plus neck biopsy last week. Can anyone kindly offer any helpful questions for us please - I feel armed with questions but with all of your experiences I would be grateful & feel honoured if you could offer any please. I wish you all a warm & positive day with your loved ones. Kind regards x

[RoyCastleHelpline Partner Ask the Nurse Roy Castle]

Welcome ArtHopeLove to the forum where you will find support and encouragement from others.

So sorry to hear about your husband and how frightening this must be for you both. Please feel free to post any questions you have.

You may find our information booklets of help/and or answer your questions, this link will take you to them, they range from diagnosis, living with lung cancer and the different treatments: roycastle.org/help-and-supp...

This link will take you directly to our booklet on 'Managing your lung cancer diagnosis' and on page 48 you will find some questions that you may wish to ask at the appointment tomorrow: roycastle.org/app/uploads/2...

We have a range of support services, from one to one support to online support groups through zoom , if you or your husband are interested in any of these, you can register through this link: roycastle.org/help-and-supp...

Our campaign section provides encouraging accounts from those living with lung cancer: roycastle.org/campaigns/

The Maggie’s centres are a great place to have a cuppa and a chat, they provide practical, financial and emotional support; maggies.org/

We offer a one off grant of up to £150 for anyone with lung cancer and you can apply for this through this link: roycastle.org/patient-grant...

Please feel free to contact us after the consultation if you would like to discuss anything, you can email ask the nurse at [e-mail] or call our free phone nurse led helpline number on 0800 358 7200 Monday to Thursday 0900-1700 and Friday 0900-1600.

Kind regards

The Roy Castle Support Team

[ArtHopeLove in reply to RoyCastleHelpline]

Thank you so very much for your kind support & extremely useful booklet. It clarifies so many things & in addition - it has given me the courage to write down our concerns in readiness for the consultation team. You’ve also given us additional useful information. Most of all you have helped us to not feel alone in this. We thank you so much & send our warmest love to you all on your personal journeys with kind regards & grateful thanks.

[JanetteR57]

hope your appointment was less daunting than imagined - it is often the not knowing that sends our imaginations into overdrive. Once the consultant has explained the results and what can be offered, then things become clearer.... hopefully you'll be assigned a lung clinical nurse specialist who often have more time to answer questions but one always worth asking is 'if I have questions after I've left here, who can I contact for more information?' good luck to you both.

[ArtHopeLove in reply to JanetteR57]

Hi there. Thank you so much for your kind words - you’re right - the fear is always worse in anticipation of the actual treatment. It’s true your mind certainly goes into panic overdrive. The meeting was emotional as it was confirmed that my husbands cancer is Stage 4 lung & bone cancer. Our oncology appointment is next week where the the treatment will be designed. It really is a cliche when people use the phrase ‘roller coaster’ because your feelings really are subjected to the peaks & troughs of the stages. Scared, tears, defiance, determination & humour - no one can tell you how to feel or at what time. Of course you try to push for positivity for the treatment until your body has to cope with the effects of the Oromorph-trying to eat to build yourself up but feeling rough as your system isn’t functioning even with Movocol. .Feeling though - that once my husbands system gets used to it all he’ll feel ready to cope with the treatment. Thank you once again for your kind support - it really is comforting to know that others have been where you are but not just endured they’ve thrived too. This all helps to almost normalise things & move you out of that surreal sense of everything. Sending warmest hope for your journeys & Kindest regards

[Lushmush88]

❤️ you got this xxxxx