So, my husband has been offered no treatment due to his co-morbidities of poor kidney treatment and CLL( in complete remission) ....He has no symptoms, has not lost weight , despite the fact that he was told 17 weeks ago that he has adenocarcinoma that has metastasised to his liver and spleen. We have an appointment for a second opinion next week but it's an NHS referral and the Consultant has already informed our Gp that she is unlikely to disagree with the original oncologist. ( not sure how this equates to a 2nd opinion) My husband tested negative for mutations/PD-L1 so can't have immunotherapy. I would like to co-pay for drugs as doing nothing at all and waiting for him to become ill and die is just unbearable, has anyone done this ? . Would we be better to have a private 2nd opinion? ...I have lost trust in the NHS because we have had such an awful experience ...feel like they are all in cahoots , determined not to spend anything on my husband x .. so much for the NHS mantra " no decision about me, without me "
Thank you x