Back in hospital

Well not doing quite as well as I would have liked ,back in hospital after another seizure ,my own fault really I think I dropped the steroids too quickly after left foot weakness delayed reaction to SRS in May .The trouble is dexamethasone messes with my heart problem this time bradicardic fast slow syndrome .I had visited ED twice last week because of this and now here I am again .Poor hubby we had had a lovely afternoon at a pleasant country house and on the way home he had to pull in as I had a prolonged seizure.Ambulance to hospital and hopefully a resolving left sided weakness .To say I am fed up is an understatement but I also feel I was A little too eager to release myself from steroids ,so brought it upon myself .Fool comes to mind ,I hate been sick in anyway and seizures are particularly unpleasant, hopefully I will be seen tomorrow start eating steroids again and be sent home to stabilise again.Sitting drinking tea now with a sore head .Contemplating life in general and how to get through this cancer journey and maintain sanity .

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  • Just a note to say I'm thinking of you. Such hard times and my words exactly it's a journey and sometimes hard to stay strong. Sending hugs and hope your home soon. 🍀

  • Hi Diane55

    Sorry to hear of your seizure and good to hear your weakness is resolving. It is hard to get a balance at times with medication when it impacts on another organ, i.e your heart and the time it takes to have your steroids reduced gradually.

    It is understandable you must be fed up and want to feel well and 'normal' again, as most people with cancer experience. There is nothing foolish in wanting to feel well and we are all the same.

    Hopefully, you will get home to recover well and let us know how you go.

    As always, you can call us on our free nurse led helpline number on 0800 358 7200

    Kindest regards

    The Roy Castle Support Team

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