An interesting video about lung cancer

[Bow-19]

youtu.be/xrmB_9jYOzA(Not working as expected?)

Thought people on this site might be interested in this video. It was posted on the Inspire website. The Consultant seems to be from the Royal Marsden Hospital in London.

Hope the link works as I am not very technically minded! Xx

[Texas64]

I live in the USA. This is an excellent and exciting video. Thank you for posting😁

[Bow-19]

Glad you like it. I thought it was good too

[tilstongal]

That is a great video. I am very interested in the mutations that are within lung cancer and this doctor explained them very well. Lots of hope there too and I think very soon this will be a standard approach to nsclc.

Thanks for sharing it.

Lorna

[Vivienneann]

This is ranjay popat at the marsden, very knowledgeable and decent man. Very up in his field

[Brogan-12]

Y is there no new treetment. Available for sclc

[waterfd]

Great video. I am pleased that more research is being done on this disease, it's a shame it wasn't available for Chris but at least there is hope for newer patients. I hope all hospital consultants are up to date with this information so we as patients/carers don't have to keep asking about mutations.

[Hopeforthebest]

Very interesting and relatively easy to understand. I hope I have a mutation of some sort as it seems the research is all about these. I don't think he mentioned ROS or maybe he did - maybe the UK are a bit behind on that particular one - will watch the video again in case I missed it. He's my consultant actually and I think he is brilliant !

[RoyCastleHelpline Partner Ask the Nurse Roy Castle]

Hi Bow 19,

Thank you for sharing this video with all in the community.

Best wishes,

All the team at Roy Castle Helpline

[livvyloot]

Was good to watch, I'm hoping that mine can be treated with these new things but as yet not had the results back from biopsy so am undergoing chemo. Was not too keen on listening to being treated by chemo only gives about 8 months, as though I did not feel bad enough hearing the news of nsclc, especially as I've never felt ill anyway and only reason lung growth was picked up was on an MRI scan for my heart, which is also dying.

[Bow-19 in reply to livvyloot]

Hope that they find something in the biopsy too, I started with chemotherapy and didn't find it very nice. Wishing you all the best Xx

[livvyloot in reply to Bow-19]

Thank you I hope they do as well. This is my second round of chemo as I had breast cancer 26 years ago, they chemo then was very aggressive and made me very ill, but I got through it - the chemo treatment this time, for me, is a breeze, a few side affects but on the whole managing it, just had my second dose this week. Nothing changed on the x-ray and they said after one dose it was still ok as nothing had got worse, still keeping my fingers crossed.

[dscontroller in reply to livvyloot]

Keep your spirits up. I had my left lung removed over 5 years ago and received chemotherapy, so a little longer than 8 months. I was also diagnosed with bowel cancer at the same time (no connection to the lung cancer).

The chemotherapy has left me with some balance and walking problems, but can still enjoy life!

All the very best.

[livvyloot in reply to dscontroller]

Thank you for your words I am glad that someone has some good news, I try to keep a positive attitude, but sometimes it does slip, I do try to live a normal life, but yet again do find it hard. Wishing you lots more years of enjoying life.

[dscontroller]

Thank you livvyloot. It really is hard to understand and accept, but it does diminish slightly as time goes by!

David

[Hidden]

This was a great video to watch. I had no idea such advances with much better outcimes had been made and its given me hope. Thanks for posting it.

[Bow-19 in reply to Hidden]

It is positive isn't it. I think advances are being made all the time.

Wishing you all the best.

[Hidden]

If you have a biopsy on the NHS are they going to do all the molecular testing needed to take advantage of these new treatments?

[Bow-19 in reply to Hidden]

I would ask your Consultant if your biopsy has been tested for these mutations and if it hasn't been ask why that is. It's good to ask questions. There is a good booklet my Roy Castle Foundation which is available on line, it is all about targeted treatments. It might be worth having a read of that too.

I was diagnosed as having the ALK mutation in November 2013. I am now a member of an ALKies group on Facebook. It's amazing the research that appears in the posts and good to hear from people around the world, in a similar situation, the treatments they are getting and the research that is taking place.

Best wishes xX

[Hidden]

I think I want that consultant .My cancer has progressed

[Hidden]

Brilliant

[Bow-19]

He seems good doesn't he. Have you been tested for mutations?

[Liampaul03]

Fantastic news about immunotherapy

[kabristanarchives]

Exciting news. Useful video. I have just finished 2 years on Pembro and have survived 3 years, also I am 84, so every day I wake up is a bonus. I now feel as good as new.

[Bow-19 in reply to kabristanarchives]

That’s great news. Well done

[foodbankcupar]

Found the video very interesting and reassuring.

Kevin.

[Bow-19 in reply to foodbankcupar]

Thank you. I posted this 3 years ago and so things have moved on further from here too, which is great

[Diesel350]

Hi Bow, yes good news , but he had nothing to say about small cell lung cancer which is what I have stage 1V , don't think small cell can be treated with immunotherapy or T cell therapy. Had my first chemo yester day hoping for good results after all six, who knows?

[Bow-19 in reply to Diesel350]

I am not an expert in lung cancer so unfortunately don’t know about the treatment for small cell lung cancer. I know that the Roy Castle Lung Cancer Foundation have leaflets about different kinds of lung cancer, which are worth reading. They also have a helpline to phone and information days through the U.K. for people affected by lung cancer. I have found these to be very useful.

There is also an American website which has Worldwide members with lung cancer called Inspire, it’s worth joining that too.

I wish you all the best with your treatment x