I'd like to start by saying how pleased I am to have found this site, it's given me great hope and encouragement reading the posts on here.
I coughed up blood on 28th November, had an x-ray that day, rapidly followed by a CT scan and on 8th December the Chest Physician told me it was likely to be lung cancer. I had a PET scan on 15th December,(which showed no metastases) followed by a tracheoscopy and biopsy on 22nd December. I saw the physician again on 5th January, he said they hadn't been able to reach the mass but there was no cancer in the lymph nodes they'd biopsied. He'd spoken to the cardiothoracic surgeon about me that morning with a view to removing my right upper lobe, and he used the magic word 'cure'. I'm not sure about this, but it was very positive news. He said I might have to have chemo afterwards, depending on the size of the tumour (4 cm on the CT scan). He said the surgery would happen very quickly, probably within 2 weeks. Again, I took this with a pinch of salt but I thought I'd have heard something by the beginnning of this week.
I spoke to the surgeon's secretary last week, she hadn't received the referral (I'd received a copy of the letter by this time). Spoke to her again yesterday, still nothing so I called the physician's secretary, who faxed a copy of the referral to her. The surgeon's secretary called today and offered me an out-patient appointment on 30th January, getting on for four weeks since I'd been referred. That was the closest I'd come to collapsing in a floods of tears. I've had lung function tests and a (negative) brain scan in the meantime.
I suppose I'd got used to things moving along fairly quickly, but everything seems to have screeched to a halt. I've known I have cancer since 8th December and was reconciled to a worse case scenario then. I thought I'd have started some sort of treatment before the New Year. It's very difficult to be told I've got something potentially curable but I've got to hang around for over 3 weeks just for an out-patient appointment. I realise that I'm a lot luckier than most though.
I'd be interested to hear of others' waiting times for surgery, and how they are now.
Thanks for letting me vent.