Am new here - and I have to say this is the best Lung cancer support page I have found!
I'm a single, northern english lass currently living in Australia.
I was diagnosed with limited SCLC on my 44th Birthday in January this year - 4 rounds of cysplatin and etoposide, with 25 x radiation sessions running concurrently for the last two chemo rounds. I then went on and had ten sessions of PCI as a preventative for mets to the brain.
After the treatments there was found to be no evidence of disease. However this joy was short lived and I'm now back in limbo awaiting biopsies and further investigations on a lump in my breast and a lesion in my lower right lung which have magically appeared over the last 3 months.
Alongside the treatments and various side effects from treatments, I have suffered terribly with SIADH which they tell me is a side effect of the SCLC - has anyone else suffered from low sodium? I'm on a drug called Tolvapton at the moment which seems to be keeping it in check.
As I haven't seen my family for a number of years, I am hoping to have any further treatment in the UK but am not sure how to start. My family are all in North Yorkshire - is anyone familiar with the services in that region?
Any input much appreciated