If you have experience of maintenance therapy and are willing to speak to a journalist for some news coverage on this can you let me know. If you send me a private message I will follow up with more information,
best wishes
Lorraine
on behalf of the Information & Support team
My husband (who has metastatic kidney cancer since 2009 and whose lung tumours were found to be primary lung cancer (adenocarcinoma), not kidney cancer secondaries, last July) has finished his carbo/pemetrexed chemo and was to have pemetrexed maintenance. That will, of course, not now be the case. We have talked to his lung consultant who won't be drawn into any detailed discussion of the rights and wrongs of the decision to withdraw the drug as a maintenance therapy but said that there isn't sufficient evidence that it meets the criteria on clinical efficacy and cost-effectiveness. We are not familiar enough with the reality to know whether that's true or not. But if the evidence was there, we'd be more than happy to challenge this decision.
Good wishes to all fighting this vile disease.
To examine or not to examine that is the question!!
What and how to trust the Keytruda is the right drug
New to the forum- in a complete spin
