Hi, I noticed there have been no new posts for a while and don't know if that's a good thing or not. Whilst I'm here, a quick update ......had my second round of Carbo/Premex last Thursday and was out of sorts on Sunday for two and a half days but have now bounced back. I mentioned to my oncologist about the mouth ulcers after the first round so she reduced the Premex dosage by 10% and so far no pesky ulcers, what a result! I feel if I can lessen the symptoms by the tiniest margin then I'm winning part of the battle. The lovely LSN rang today to see how I was doing, I told her all was okay. She gave me the news that I tested negative for the ALK gene as was the same for EGFR. I asked about other genes that are routinely tested in the States but the reply, as you're probably are all aware that we don't have a targeted drug that has been licenced yet. Why are we so behind with research? The nurse also said that after the four rounds of chemo and a CT scan that they will put me on Alimta maintenance. Is anyone currently on it and if so what does it involve and more importantly what are the side effects. Hope all you lovely special people are enjoying the sunshine. Take care and hugs to you all. Moni x
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