Good morning peeps! I know I said I would share my pet results but I’ve had to take a little time to absorb it all myself. We were expecting bad news but sometimes you’re just not prepared for what you’re going to hear. That was the case here when they told me I was 100% CANCER FREE! Holy moly I wasn’t expecting that and neither was my oncologist lol. As it turns out, the symptoms I’ve been having are likely Lupus or MS. Further testing is happening to confirm but even if it’s one of those ...it’s better than metastasis because I’ve reached my lifetime radiation allowance and the only treatment that works for bone mets (and even IT doesn’t cure anything the second time around) is radiation. My doctor thinks the immunotherapy trial (and a lot of praying) is what caused my incurable cancer to have disappeared. I hadn’t had a clear scan in the almost 4 years since diagnosis. Even in September my tumor showed some progression but apparently that’s how these immunotherapy infusions work. Here today gone tomorrow. I’m going to find out the name of the drug since it’s finally been approved for use outside the trials. It could help some or all with stage 3 or worse NSCLC.
I am a team leader for my team in the Jersey Shore Free to Breathe walk for lung cancer research this Saturday and I had to rewrite my speech because of my results. I wanted to post the link on here in case anyone was interested in walking but this site doesn’t allow paste and copy. I’ll try and figure out a way today but in the meantime if anyone wants to register to walk or to just sponsor a team member, it’s easy to register. You can get the website off my Facebook page (Deana DAmelio Stowman) or look for the info on here in a few. Funding lung cancer research is what’s going to save lives. Without this drug I likely wouldn’t be here because of the location of my tumor and all the pressure it was putting on my heart and bronchial tube. Our cancer doesn’t get near the awareness and attention it deserves and there are no pink parades and nfl players wearing white ribbons and socks. We are the “red headed stepchildren” of the cancer world and it’s time it stops. I don’t want to sound like a broken record or a lunatic lol...I just want everyone to hear the great news I heard for themselves or loved ones. There IS a cure out there but until lung cancer gets the same awareness as the other, less ugly cancers then it’s jist not going to happen. Thank you to everyone for all the support and also know that I’m not going anywhere. This group has done wonders for me and my cancer journey and I won’t abandon ship just because of my results. We all know how likely it is for the cancer to return at some point and I’ll need my support pals if it does(hopefully it won’t ) but I want to be here to support everyone else like you’ve done for me. Having this group to bounce options and ideas off has been cathartic in so many ways and as long as you’ll have me...I’m staying. Good health to everyone xoxo