Hi all, feeing nervous and ticked off at the same time. Doctor stopped my Sandostatin shot after my colon surgery for over 3 months so colon could heal. He stated since my cancer is slow growing it would be fine. Well. Guess what? My count has more than tripled from chromogranin being 120 to almost 500 !
Now waiting to see oncologist on Tuesday. Don't know what the outcome will be. To top that off, I may not get any more help for the shot that cost $16,000 a month. I'm just receiving all kinds of " good news" these last couple weeks.
Could use some prayers from you guys , thank you!!
Donna