Since my dad is declining neurologically, I am faced with a tough, tough decision and wondered if anyone had thoughts or experiences themselves with whole brain radiation, good or bad? My dad is currently doing focal radiation to the brain stem. Moffitts treatment protocol for lepto is craniospinal radiation. His radiation oncologist now thinks whole brain radiation carries a risk for my dad. But it’s to the point where it’s screwed if you do, screwed if you don’t and I don’t know the right answer. He’s getting to the point where I can’t understand him and he has a feeding tube through his nose because he has lost his jaw strength and tongue issues. The lepto has caused him to not be able to swallow well anymore. Every doctor is being pessimistic, saying it’s only going to get worse which is sending me into panic mode on convert to whole brain radiation Monday if his radiation oncologist is willing, or to stick it out with focal brain stem radiation as he’s now had 3 out of 10 treatments and has declined after 3 so far with the leptomeningeal disease. I am more concerned about his brain than anything at this point, to stop and or slow down the lepto in the brain. I don’t know whether to convert to whole brain radiation and take a chance or stay with what we’re doing even with the decline, so hearing other experiences with whole brain radiation would be helpful. My utmost concern is helping him and not harming him and I don’t know what to do on this. Everyone says at this hospital he’s stuck at that after whole brain radiation it fries the brain and you’re never the same. I don’t want to harm my dad in trying to help him. He is getting focal spinal cord radiation also. He needs Keytruda or immunotherapy too if I can somehow make that happen soon.