Chat room: Is there any chance, or likelihood, of having... - LSN

LSN

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Chat room

sue32 profile image
3 Replies

Is there any chance, or likelihood, of having a chatroom for fibromites? Any comments guys?? Mind you, I would be permanently on it!! XX

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sue32 profile image
sue32
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3 Replies
morganite profile image
morganite

ive got lymphodema and it might be nice to have a chat room, ive got alot of info and support from others here.

norberte profile image
norberte

that would be a good idea

i'm just wondering about costs tho - i think the lsn said it doesn't have to pay for this (not sure how it does get funded, there's probably info about that somewhere in the small print)

if there was a chatroom presumably health unlocked would want it to have moderators? who would need paying

for people with 2ndary after cancer, there's a forum with occasional chat sessions on the breast cancer care website - if you can bear to negotiate the minefield that is their constantly-being-redesigned-forums, & imho their policy on unilaterally deleting posts is unaccountable & badly policed (so the forums themselves, never mind chats, can get overenthusiastically moderated) but i did learn loads from the other lymphies there

some of them are also here!

i get the impression things might be harder for people with primary - apart from the lsn & its local meetings, there's the fb group & is there anything else? are there any forums where you're not being constantly interrupted by us post-cancer lot??

LymphSuppNetwork profile image
LymphSuppNetworkPartnerLSN

Hi Sue

There are two fibro group chat rooms on health unlocked - go to front page and search in the alphabetical bit under F. Hope they fit your needs.

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