where can I get more information on lymphoedema in the legs and ankle? Just learned that I have it.

[susie2012]

[Christo]

Hi Susie,

I have just joined up here, but it is still very new. i would suggest you get signed up with the FB site which has lots of useful links and infor. Click the link . . .

facebook.com/groups/2824159...

If you need an iinvite let me know.

Welcome and have a good day too

Cheers

Christo

[susie2012 in reply to Christo]

Thanks Christo,

I have requested to join the group on FB. I am waiting for a reply.

SUSIE

[morganite]

your surgery and practice nurse should help, i joined the Lymphodema Support network and get a magazine quarterly and they have loads of link websites, Basically locally i found the support poor, no active groups near to me and ive always been managed at surgery level never ben to the lyphodema clinic at the hospital, but joi ing the LSN you can get loads of leaflets for free BOUT ALSORTS SO GOOD LUCK.

[LymphSuppNetwork Partner LSN]

Hi Susie

There is lots of information on the LSN website - lymphoedema.org or you can ring the office on 0207 351 4480 and we will gladly send out a free information pack and will try to answer any questions you might have. There are also over 60 local groups in the UK so you may have one in your area.

[joanc]

Hi Susie

Lymphoedema Support Network produces lots of factsheets on lymphoedema and you can talk to someone at the office or look on the website the address is above.

[susie2012 in reply to joanc]

Thank you Joanc

[Lruk]

Having only just been diagnosed, like Susie, I have also found this information helpful. Thanks folks.

[susie2012]

I have received my welcome pack and found it very useful.