How can you access the best lymphoedema care on the NHS? - LSN

LSN

5,052 members2,330 posts

How can you access the best lymphoedema care on the NHS?

LymphSuppNetwork profile image
LymphSuppNetworkAdministrator

In the first of our new series of Ask the Experts Anita discusses NHS service provision with LSN Nurse Advisor Denise Hardy.

youtu.be/87reh7p9Y_8

7 Replies

My hospice based lymphoedema clinic closed January 2021. I've not yet been offered an appointment (due March 2021) by the new provider. I'm in the South East, UK.

LymphSuppNetwork profile image
LymphSuppNetworkAdministrator in reply to Perido

Which service was that that closed Perido?

The Lymphoedema Clinic at St Catherine's Hospice in Crawley, West Sussex.

LymphSuppNetwork profile image
LymphSuppNetworkAdministrator in reply to Perido

Thanks, and where is the new service supposed to be?

After a bit of investigation and some misinformation from my local CCG my understanding is that former patients of St. Catherine's Hospice have been referred on to different providers depending where they live. To the best of my belief two of the new services are at Healogics Wound Healing Centre in Horsham, W.Sussex and Leatherhead Community Hospital, East Surrey under Surrey Downs Health & Care.

LymphSuppNetwork profile image
LymphSuppNetworkAdministrator in reply to Perido

Many thanks

I'm in the West Country, there's 3 centre's covering a 50 mile radius, my nearest one was a 20 mile round trip. Since I stopped driving the nurses have done a home visit for me, but otherwise there's nothing available for me