How can you access the best lymphoedema care on the NHS?

[LymphSuppNetwork]

In the first of our new series of Ask the Experts Anita discusses NHS service provision with LSN Nurse Advisor Denise Hardy.

youtu.be/87reh7p9Y_8(Not working as expected?)

[Perido]

My hospice based lymphoedema clinic closed January 2021. I've not yet been offered an appointment (due March 2021) by the new provider. I'm in the South East, UK.

[LymphSuppNetwork Partner LSN in reply to Perido]

Which service was that that closed Perido?

[Perido in reply to LymphSuppNetwork]

The Lymphoedema Clinic at St Catherine's Hospice in Crawley, West Sussex.

[LymphSuppNetwork Partner LSN in reply to Perido]

Thanks, and where is the new service supposed to be?

[Perido in reply to LymphSuppNetwork]

After a bit of investigation and some misinformation from my local CCG my understanding is that former patients of St. Catherine's Hospice have been referred on to different providers depending where they live. To the best of my belief two of the new services are at Healogics Wound Healing Centre in Horsham, W.Sussex and Leatherhead Community Hospital, East Surrey under Surrey Downs Health & Care.

[LymphSuppNetwork Partner LSN in reply to Perido]

Many thanks

[Jennymary]

I'm in the West Country, there's 3 centre's covering a 50 mile radius, my nearest one was a 20 mile round trip. Since I stopped driving the nurses have done a home visit for me, but otherwise there's nothing available for me