How do I get the NHS to cover the costs of this procedure

[Lymphodema_-pain1]

My NHS have admitted that they have caused my current Lymphodema so how do I get them to fund this procedure

[Lynora]

What procedure? Depending on what has been discussed, much depends on where you are in the country; if your presenting condition is suitable for surgical intervention; if other forms of management of lymphoedema have been attempted.... there is no easy answer or ‘quick fix’ sadly.

[CraigDavidson]

They may have caused it but what was the alternative Im presuming surgery for something. And sorry there isn't a wonder fix

[lovesradio]

Well, I think you have done really well to get your NHS to admit anything! You don't say what procedure you are looking for or where you are in UK as this would affect what your next steps would be.

[Lymphodema_-pain1 in reply to lovesradio]

I am in South Yorkshire and I am looking for surgery on. Right arm. I hope this helps

[Lynora in reply to Lymphodema_-pain1]

Are you attending one of the Lymphoedema clinics in the county?

Whilst there are surgical options, not every individual is suitable - for a number of reasons - plus there are a limited number of surgeons working in Lymphoedema surgery.

Have you had cancer treatment?

[lovesradio]

Did you have help from your MP or similar to get the admission from the NHS? If so it might be worth contacting them again to try to get at least a contribution towards the procedure you are seeking.

[AnneBury in reply to lovesradio]

An admission from the NHS could just mean that surgery (for example for cancer) caused the lymphoedema

[AnneBury]

Is it negligence by the NHS, though, or have the NHS said it is a possible consequence of surgery.

[Lymphodema_-pain1]

NHS have said its the result of a carpet tunnel op. I should have been told prior to the surgery but I wasn't.

[AnneBury in reply to Lymphodema_-pain1]

So it was a risk from your operation but you were not told that?

[Lymphodema_-pain1]

No I wasn't. I raised concerns with the surgeon but was assured by him that my arm would be alright.

[AnneBury in reply to Lymphodema_-pain1]

There is research going on which seems to show some people have more of a predisposition to secondary lymphoedema than others. Also the medical professions knowledge of lymphoedema is poor- although you would think someone operating on hands and arms might. If you have not already done as, and feel as you do, then presumably you have to make a formal complaint.

[Lynora in reply to Lymphodema_-pain1]

Where has the lymphoedema manifested? Lower or upper arm? Hand, fingers?

Was the tourniquet on too long?

If you raised concerns with the surgeon, does this mean you already had a pre-existing problem with the arm? I had bi-lateral CTS early noughties - surgeon would not operate on my affected side, (BC 2001) but once the surgery was done on the other hand, the pain disappeared from the affected side! He said it might!

[Bev-1966]

I have had both of my carpel tunnel’s done and they never told me I was at risk of lymphoedema in my arms.