I first got swelling in my right leg in August 2012. It came out of the blue and I've never had cancer or anything else that should have affected my lymph glands. My GP sent me for tons of tests and eventually sent me to a vascular consultant on Feb 11th 2013. He diagnosed primary lymphoedema.
It took a week or two to get stockings in the correct size but I now have them and have been wearing class 2, thigh length stockings (medi brand) for about 3 weeks. When I started wearing them my right ankle was 3.5 com bigger than my left, it's now down to 2.5cm bigger.
I'm a bit worried that my affected ankle is still bigger than the other one. Does it mean that I need class 3 stockings? or some other form of treatment in addition to the stockings? Or is it just too late and I'm stuck with that 2.5 cm now and will never get rid of it?
My GP has no idea what to do with me and is encouraging me to wear below knee stockings because he says they'll be more comfortable (even though I have swelling in the thigh too). I have the impression that if I know what I need and can explain it then he'll do it though. I am going to tell him about the learning module available to him but I don't know if he'll take it.