I now have a diagnosis of primary lymphoedema (from St Georges) affecting both legs and pelvic region. Only my right leg and pelvis are symptomatic, and I wear a flat knit made to measure thigh length stocking plus toe gloves every day on the right leg only. Really helpful, and in the year since I started treatment the swelling has reduced steadily from 68% down to 31%.
Two issues would really appreciate people's experience on. I'm a very active person, and on average walk 5-12 miles a day. First is whether it's worth trying stocking without the silicone band at the top, as am having frightful itching at top inside thigh where the band goes. Second is whether when I practice yoga I need to keep the stocking on. Would be nice to practice without it, but don't want to risk making things worse!
Thanks for any tips you might have from your experience.