Does anyone have any idea why you would have upper extremity swelling and it’s not Lymphedema. Arms, hands, face swell for no reason.

[Changinghistory]

I woke up with one side of my face swelling. I went and had a lymphatic drainage massage. Then the swelling moved to my arms, hands and face. I went and had the lymph test and they said it wasn’t Lymphedema that I was draining properly. I have no idea what to do. Vascular cleared me, cardiology cleared me and so did rheumatology.

[Lynora]

Lymphoscintigraphy is the only way to find why the lymphatics are causing problems. A dermatologist should be able to organise this? Where are you based?

[Changinghistory in reply to Lynora]

Hi Lynora, I did that test and they said I am draining properly and there is no Lymphedema

[Lynora in reply to Changinghistory]

Did dermatology have any opinions? Allergy? Auto-immune?

[Changinghistory in reply to Lynora]

I have environmental allergies. No auto immune

[Scorpio0711]

Hi, I have this but it started off with swelling to maybe my right cheek 1 day then my bottom lip right side on another day etc...etc...

I now have swelling in my face which also sits in my neck at times, both arms, both hands, torso, both legs, knees ankles and feet.

I apparently have tennis elbow in both elbows due to swimming.

I’m still trying to get to the bottom of all this. Sorry I can’t be of any help, however if by some amazing chance a miracle occurs and my g.p refers me to see my Rheumatologist- as I have SLE, I can maybe get to the bottom of it there.

🙏

[Changinghistory in reply to Scorpio0711]

Prayerfully we will all get some answers and cures. Are you in the US?