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Lymphedema swelling of hand from wearing sleeve and glove?

I had a custom fit sleeve and glove made. My hand swells really bad when I wear the glove and sleeve. When I take the sleeve and glove off my hand goes down. Have anybody heard of anything like this?

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Yes, I have seen this - there may be a problem with the measurements, probably at the wrist and forearm. Contact your provider.

Are you doing daily SLD?

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I sometimes have this issue too but when I remove the glove it settles down. I will wear the glove for a few hours and then take it off for another hour.

Last month I had a Lymphoscintigraphy (an imaging technique used to identify the lymph drainage basin) on my arm/hand and leg. It showed that from the inside of my wrist, lymph flowed down to my palm, around my thumb and them back up my arm. This could explain why my hand would swell because the glove would constrict the flow down.

I would recommend Lymphoscintigraphy to everyone who has lymphedema to show how to correctly massage because we don't all necessarily follow the standard lymph chart.

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If I wear my sleeve at night my hand swells so much it becomes unusable. A glove or an all in one does not stop it. I now only wear the sleeve during the day.

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Hello deniseelliott30, I have always been told not to wear the sleeve during the night. In actual fact I am not wearing anything during the day as my skin is being so irritated with the sleeves, I have Lupus vasculitis & panniculitis. Anyway the point is that the swelling is no worse at this minute. Did your lymphedema specialist not say compression garments off at night? Hope you get sorted out, best wishes, Honor.

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I have had lymphedema since 2004. In those days they said only wear the sleeve during the day. Then about 5 years ago the said that the accepted wisdom had changed and i should wear it all the time. After a while I told them what it was doing to my hand and that I had to be able to use it. If I am honest I do not think the sleeve is any use at all. What does work for me is losing weight, sweating and bandaging. But having had this so many times I am getting to the stage where I can no longer bear it. I think it is probably far too late for me to have the operation and I could not afford to pay for it. Do hope things work out for you.

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There are now nighttime compression garments in production. They are very comfortable. I would never recommend wearing regular compression 24/7 unless there has been surgery done on the affected limb, or post liposuction.

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I have all in one now separate did not suit me 😁

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Yes, I was convinced that the swelling in my hand was caused by the sleeve and glove constricting lymph flow at the wrist but all the professionals just shrugged when I suggested it and told me it was important to keep wearing the compression. I was lucky enough to be able to have the LVA operation last July and stopped wearing compression garments in January. I still have a little swelling around my knuckles and fingers but no where near what it was like before.

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Sounds like the sleeve might be too tight and so restricting lymph flow from hand. I had a sleeve and glove for a while but am now using a Mediven gauntlet which is working fine combined with SLD, yoga and swimming x

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What's a SLD?

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Self lymphatic drainage

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Hi DS1955 I also have hand swelling and forearm too. My sleeves gloves gauntlet various types over the years have not ever worked for me with secondary lymphoedema .my arm has restricted movement and aches quite often which I believe the sleeves agravate But my Lmph Nurse says to wear it. I would like the Lva surgery but she says I wouldn't qualify 😠grr!

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I'm not restricted. My range of motion is good. Even my theapist is impress with that. However, I told her if there's a cause there's an effect. What's the cause? She mentioned a blockage. So now I'm going to have an ultrasound. Any suggestions?

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hello

yes, I, too, notice very bad swelling after wearing glove and sleeve. I was beginning to think it was only me that had this !!!! mentioned it to my lympho nurse who seemed surprised and had not come across this before . pam

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I have had LD since 2011 in my right arm and despite years of "made to measure" garments, they still all leave me with a swollen hand. I get the shoulder shrug treatment, but I know it is not rare for this to happen. I only wear mine during cardio workouts and cleaning, otherwise I am better without it. All that fluid getting trapped in the hand cant be good around all the little bones etc that we have there and the hand id the hardest place to drain. I just keep being told to wear it all day every day until I go to bed.

I am going for lymphoscintigraphy next month and hopefully will have a better understanding of the flow and how it can be controlled. :-)

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