MLD

[linda6]

Do you have to pay privately for MLD and does anyone know of any therapists in the Worcestershire area?

[clown]

No. You definitely don't have to pay privately for MLD. Explore what you can get in your area under NHS. Look at hospitals, hospices and specialist cancer providers. Good Luck.

[Taffia]

It's hard to find someone who does it on NHS. There is no one in my area of Essex. I found 'the Haven' in London and they have offered me 10 sessions free. I go up there once a week. Have tried for a referral when I see the breast care nurses and my Oncologist but nothing has happened yet. The local Hospice would only do it with a referral so I was back to square one!!!!

[Lynora]

You don't always have to pay for MLD, but many NHS clinics don't have the time to do it. There are a couple of therapists in Worcestershire - have a look here mlduk.org.uk (if you are looking for treatment for lymphoedema, they must have DLT after their name). There is an NHS clinic in Gloucester - but depends on where you are in Worcestershire - it may be too far from you.

[chris47]

No you do not have to pay for mld i was referred to lymph care they hold a clinic in Stourbridge but depending on where in Worcestershire you live it may be too far for you,

[linda6 in reply to chris47]

Thank you Chris I am seeing a lymphoedema nurse on Thursday but I have to travel to Pershore I will ask him about the clinic in Stourbridge.

[chris47 in reply to linda6]

Just so as you know for Thursday Lymph Care is called lodge clinic which is just inside Mary Stevens Hospice the nurses there are brilliant but there is a waiting list.

Good luck for Thursday let me know how you get on?

[linda6 in reply to chris47]

Hi Chris, I have been to see the lymphoedema nurse today three quarters of my arm has decreased in size but the upper arm has not. The nurse checked the size of my sleeve and I have been wearing a sleeve that is smaller than the one prescribed the sleeve was too short so consequently the swelling on my upper arm did not go down. I have now been given me another prescription for a longer sleeve so I hope I get the correct sleeve this time.

He did mention something that may be of interest to everyone, in the summer (if we have one) when it gets hot Avon or Boots sell a moisturiser that has menthol or mint in it that can be applied in the mornings apparently this helps if your arms swell in hotter temperatures.

[chris47 in reply to linda6]

Hi Linda, Glad to hear things went well today hopefully when you get your new sleeve it will be better. I have it in the arm but also under arm and back which is where they are trying kinesio tape.

Interesting about the moisturiser i must look for some to try.

[naominorthenellis]

In the UK it very much depends on your local health authority and it depends on if you have secondary or primary lymyphoedema. I have to pay for all of my MLD massages - I have primary lymphoedema and my GP said he might be able to get one or two a year locally for me. To find a local Vodder trained therapist go to the MLD UK website: mlduk.org.uk/therapists/ Good Luck

[Squinny]

New to this forum and just reading people's posts it looks like it will be really helpful. I do pay privately for MLD as in my area Kent I do not qualify for it on the NHS as my condition is too mild. As all my own research says that early treatment is best I think it's something worth doing and I find it really beneficial on lots of levels.

[morganite]

i couldnt get any sessions and cant afford it privately, However the clinic nurses taught me some exercises i do daily and it has really helped.

[chris47]

I was able to get 10 sessions on the NHS. The nurses did teach me to do sld which i do twice a day. Someone did tell me that they go private once a month does anyone know what the cost is?

[Rebec]

I was asked £80 for about two hours of treatment, but found out that some distance away, someone is doing it for £50.

[Blunderwoman]

I pay privately too, but as I do SLD I go every 6 weeks. Mine is Lipo-Lymphoedema. I don't get anything much on the NHS, had to petition 3 times for bandaging. Have to travel 25 miles to get it... But have a great discussion about it all!