Lymphoedema surgery ...2nd post

[LadyL07]

Tonight ITV Wales briefly covered the surgery I posted about last week ...hopefully here's the link

facebook.com/permalink.php?...

[pollyslymph]

thanks so much for the update......I tried to get a referral last year but could not from England......Perhaps things will expand now.......I also am trying to get it done in Italy with the NHS......

[angie10 in reply to pollyslymph]

Hi. Hope you have some luck with that. Maybe you could update us on how you get on

[Jayne1959]

Hi

This hospital is three miles away from me. I was ecstatic when I heard that there was something just down the road, that could possibly help my primary lipodeama / lymphodeama.

I have had this condition in both legs for over thirty years. I was then told I couldn't be considered for treatment because whilst it was being trialed, they would only be taking patients within a certain criteria.

This doesn't include my condition although I have suffered the acute pain and embarrassment for thirty plus years and the condition raises my BMI putting me in the not suitable range.

I understand whilst this surgery is new and they want to show figures that are positive, in order to get further funding. This may be the case but I can't understand why a deliberating condition suffered over many years, should not be considered along with a swollen lymb developed after surgery.

Please don't think I am underestimating how horrible and painful this is for post opp but please consider primary lipodeama / lymphodeama as seriously.