Hi, I am meme, and I desperately in need some help.
I am new here and new to having Lymphedema as well. About a year and a half ago I suffered a blood clot in my left lung, while in the hosp they diagnosed me with Lymphedema. I had never heard of it, have no clue how I got it, but I have 2 extremely bad knees to the point its bone rubbing bone. Due to the prior blood clot ( it was gone in 5 mos ) since been checked and no more blood clots have formed so good news there but they are keeping me on a low dose blood thinner for the rest of my life. No orthopedic surgeon will touch me due to the blood clot risk and I respect that but mean time my knees are beginning to hurt to the point I can barely get up and walk so I am relying on my wheel chairs more and this I hate because I was walking okay then I fell months ago and well the knees said no more. I have the Bio Compression Pump I use and the special wraps I use when I can get someone to stay with me , can't get up with them on they slide off no matter what I do so I get aggravated and toss them in the bag, only my husband can put them on and when he has to run errands my friend sits with me but she can't put the wraps back on properly when they slide down. When my wraps are on my knees feel so good, and don't hurt but I can't go anywhere, even to the bathroom that they don't slip down my legs. Mine come from the ankles to my thighs. Anyways I am looking for a knee support that will go around my 42 inch leg. No my knee is not 42 inches, but just above the knees is where my lymphedema is so in order to wear the knee support that I can put on and off by myself I need a 42 inch to fit comfortable. Everywhere I have looked the measurements only go to 36 inches or the price is way over 100.00 plus dollars. I have insurance and one place said they would work with me in getting the right size etc but they want me to pay my full deductible before they will even see me. I said I only am supposed to pay the copay why the whole deductible but that's their policy. Does anyone know where I can find a knee support, not a brace, not a pull on but one I can wrap that will fit me and not cost so much?? I would greatly appreciate any help.