cellulitis: Ive had cellulitis twice now and had... - LSN

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cellulitis

irenechaloner290951
irenechaloner290951

Ive had cellulitis twice now and had 4 consecutive IV drug treatments, it appears to have settled now but am scared it will come back, h s s anyone got any tips to keep it away.

18 Replies
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I believe, apologies if I'm wrong, if you get Cellulitis twice in one year you should be put on low dose antibiotics for life, if I've got that wrong I'm sure someone will put me right and be able to help you better than I can, good luck xxxx

There is a downloadable document on the LSN website about cellulitis - print it off and take it to your GP. Repeated infections can be an indication that you require long term antibiotics - the document explains this well.

Rebec
Rebec
in reply to Lynora

Wouldn't trying to reduce the extra "fluid" in the affected limb as much as possible also reduce the chances of getting cellulitis again?

Lynora
Lynora
in reply to Rebec

Sadly the size of a limb doesn't make a difference to the incidence of cellulitis. It happens because the lymphatic system is damaged, and cannot work effectively at containing bacterial 'invasion'.

Sage7
Sage7
in reply to Lynora

I cannot locate the document regarding cellulitis on the LSN website. Could someone please post the link that leads you right to the article?

Lynora
Lynora
in reply to Sage7

lymphoedema.org/Menu3/Cellu...

You can find the link by following the tab Living With Lymphoedema - then click on the Cellulitis tab and the pdf is embedded part way down the page.

Sage7
Sage7
in reply to Lynora

Thank you.

Hidden
Hidden

I totally agree with the other comments. I was put on long term antibiotics after having cellulitis twice in 6 months. i also have stronger antibiotics at home to take if I notice cellulitis beginning to nip it in the bud. I take them with me if I go away.

Have you been shown exercises to reduce the swelling? These are life long too. You need to contact your GP about the antibiotics and if you don't get any joy, contact your lymphoedema nurse who should be able to help. Your lymphoedema nurse should be able to show you exercises and the LSN have a DVD showing them.

Hope things have now calmed diwn for you xx

My lymphoedema nurse wrote to the doctor requesting I should have prophylactic anti biotics ( for life) . When I saw doctor, he had no idea of the dosage, it is based on your bmi, fortunately I carry a copy of the LSN document at all times( just in case) so he was able to calculate the dosage from the info. in this. He was going to do research and read up on the LSN website afterwards. Result!! I recommend anyone with lymphoedema to print off a copy and carry it your bag as it is such an anomaly to most people, including the medical profession. Do your own research, there's lots of info. on the Internet and it will also help you to understand this devastating, depressing problem and realise that you are not alone and can overcome the low feelings ( most of the time).

Hidden
Hidden
in reply to Lindalou

Hi, what document is it that you have.

Lindalou
Lindalou
in reply to Hidden

It's the Consensus Document on the Management of Cellulitis in Lymphoedema. It's from the British Lymphology Society and found on the LSN support network. Xx

Hidden
Hidden
in reply to Lindalou

Been on lsn but didnt no what i was looking for ha ha thanks

If you are a member of the LSN they will send you a neater booklet of the same document, although I believe this is currently being reprinted as it is revised every year. It is also available on the British Lymphology Society website on the front page. On the LSN website go to the tab 'Cellulitis' and there is a link within the page.

Hidden
Hidden
in reply to Whitesugar

Do you have to be an landlord member to get lymphoedema leaflet ?

Whitesugar
Whitesugar
in reply to Hidden

Sorry, not sure what you mean? If you join you can ask for any of the LSN's leaflets as far as I am aware

Hidden
Hidden
in reply to Whitesugar

I might of read it wrong but when I went on it said you had to be a member £15 per year, unless I was looking at something else

Hidden
Hidden
in reply to Hidden

Don't no wat the landlord bit is lol must of been my dictionary and me not looking what I was writing

Our local health board here in west Wales has had a complaint against it - a lady went to the Out of Hours GP at the local General Hospital as she had a blister rash on her arm - she had lymphoedema in that arm following cancer surgery. She was diagnosed with shingles and sent home. Next morning she collapsed and died later in the day at the same hospital - complete organ failure from sepsis. The GP had not taken any account of the lymphoedema nor had he taken usual checks such as temperature, pulse and blood pressure. So YES - keep the article with you and wave it under the nose of any medical staff coming near you!! wales.nhs.uk/sitesplus/docu...

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