cellulitis: Ive had cellulitis twice now and had... - LSN

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cellulitis

irenechaloner290951 profile image

Ive had cellulitis twice now and had 4 consecutive IV drug treatments, it appears to have settled now but am scared it will come back, h s s anyone got any tips to keep it away.

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irenechaloner290951 profile image
irenechaloner290951
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18 Replies
Jennymary profile image
Jennymary

I believe, apologies if I'm wrong, if you get Cellulitis twice in one year you should be put on low dose antibiotics for life, if I've got that wrong I'm sure someone will put me right and be able to help you better than I can, good luck xxxx

Lynora profile image
Lynora

There is a downloadable document on the LSN website about cellulitis - print it off and take it to your GP. Repeated infections can be an indication that you require long term antibiotics - the document explains this well.

Rebec profile image
Rebec in reply toLynora

Wouldn't trying to reduce the extra "fluid" in the affected limb as much as possible also reduce the chances of getting cellulitis again?

Lynora profile image
Lynora in reply toRebec

Sadly the size of a limb doesn't make a difference to the incidence of cellulitis. It happens because the lymphatic system is damaged, and cannot work effectively at containing bacterial 'invasion'.

Sage7 profile image
Sage7 in reply toLynora

I cannot locate the document regarding cellulitis on the LSN website. Could someone please post the link that leads you right to the article?

Lynora profile image
Lynora in reply toSage7

lymphoedema.org/Menu3/Cellu...

You can find the link by following the tab Living With Lymphoedema - then click on the Cellulitis tab and the pdf is embedded part way down the page.

Sage7 profile image
Sage7 in reply toLynora

Thank you.

I totally agree with the other comments. I was put on long term antibiotics after having cellulitis twice in 6 months. i also have stronger antibiotics at home to take if I notice cellulitis beginning to nip it in the bud. I take them with me if I go away.

Have you been shown exercises to reduce the swelling? These are life long too. You need to contact your GP about the antibiotics and if you don't get any joy, contact your lymphoedema nurse who should be able to help. Your lymphoedema nurse should be able to show you exercises and the LSN have a DVD showing them.

Hope things have now calmed diwn for you xx

Lindalou profile image
Lindalou

My lymphoedema nurse wrote to the doctor requesting I should have prophylactic anti biotics ( for life) . When I saw doctor, he had no idea of the dosage, it is based on your bmi, fortunately I carry a copy of the LSN document at all times( just in case) so he was able to calculate the dosage from the info. in this. He was going to do research and read up on the LSN website afterwards. Result!! I recommend anyone with lymphoedema to print off a copy and carry it your bag as it is such an anomaly to most people, including the medical profession. Do your own research, there's lots of info. on the Internet and it will also help you to understand this devastating, depressing problem and realise that you are not alone and can overcome the low feelings ( most of the time).

in reply toLindalou

Hi, what document is it that you have.

Lindalou profile image
Lindalou in reply to

It's the Consensus Document on the Management of Cellulitis in Lymphoedema. It's from the British Lymphology Society and found on the LSN support network. Xx

in reply toLindalou

Been on lsn but didnt no what i was looking for ha ha thanks

Whitesugar profile image
Whitesugar

If you are a member of the LSN they will send you a neater booklet of the same document, although I believe this is currently being reprinted as it is revised every year. It is also available on the British Lymphology Society website on the front page. On the LSN website go to the tab 'Cellulitis' and there is a link within the page.

in reply toWhitesugar

Do you have to be an landlord member to get lymphoedema leaflet ?

Whitesugar profile image
Whitesugar in reply to

Sorry, not sure what you mean? If you join you can ask for any of the LSN's leaflets as far as I am aware

in reply toWhitesugar

I might of read it wrong but when I went on it said you had to be a member £15 per year, unless I was looking at something else

in reply to

Don't no wat the landlord bit is lol must of been my dictionary and me not looking what I was writing

purple-hat profile image
purple-hat

Our local health board here in west Wales has had a complaint against it - a lady went to the Out of Hours GP at the local General Hospital as she had a blister rash on her arm - she had lymphoedema in that arm following cancer surgery. She was diagnosed with shingles and sent home. Next morning she collapsed and died later in the day at the same hospital - complete organ failure from sepsis. The GP had not taken any account of the lymphoedema nor had he taken usual checks such as temperature, pulse and blood pressure. So YES - keep the article with you and wave it under the nose of any medical staff coming near you!! wales.nhs.uk/sitesplus/docu...

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