I'm new here...

[EmmaCorri]

My name is Emma I am 36. I was born with a rare medical condition now known as Proteus Syndrome which effected the growth of my limbs and my Lymphatic system and ment that I have lived with Lymphoedema from birth. I have only recently come to know about the LSN but so pleased I have.

[Hidden]

Hi Emma, welcome to lsn any questions you want an answer to someone here will be able to answer it for you 🙂

[Lynora]

Welcome Emma. I hope you under the care of a Lymphoedema clinic. The people on this forum are a very supportive bunch!

[Jennymary]

Hi Emma, welcome to our club, whereabouts in your body is your lymphodema, please post any questions here, I'm sure someone will have an answer for you or could point you in the right direction x

[Bijingo]

Hi Emma - welcome! You have come to a great place for a sharing of ideas and support.

[CCT67]

Hi Emma welcome to our group! Is your Lymphoedema in your legs or elsewhere? I hope you've been referred to your local Lymphoedema Clinic. If you haven't your GP can refer. It's important you receive advice relevant to your condition and are fitted for compression garments at the Clinic.

Cat x

[AnneBury]

If you have not already done so visit the website of the Lymphoedema Support Network. lymphoedema.org . There is lots of information there.

[lizmurphy61]

Hi Emma I am new here as well and the people on the site are brilliant I have put loads of questions on and they have answered every one I have my first appointment two weeks today but in The meantime the people on here have put up with me lol xx

[EmmaCorri]

Thank you all for your welcome...

I have bilateral Lymphoedema in my legs and have been wearing compression stockings since I was about 14 although refused to wear them quite a lot then... I have been under the care of the Lymphoedema clinic at St catherine's Hospice for the last 8yrs or so and they are brilliant and it is well managed at the moment. The thing I have found most difficult is finding shoes that I like and are comfortable to wear as due to my medical condition I take a size 15!