IS THIS IMPORTANT?

[completely-zero654]

Can anyone tell me please why is it important that you have to let, say the doctors etc., know that you have lymphoedema (non-cancerous) if they want to take your blood pressure? also is it important that we have to wear something so that in an emergency other people know we have lymphoedema. Confused.

[Pjtrant]

I take it your arm is the affected limb. Its important not it have any injections with needles in that arm due to risk of infection. i belive the pressure cuff is also not good because it can damage the arm lymphatics with too much pressure.

[completely-zero654 in reply to Pjtrant]

Hello Pjtrant thank you for replying to me. I have lymphoedema in both legs and my left arm. I will take advice as I am to have a blood test this week. Once again many thanks, take care.

[Crusee]

Hi

I have just got back from my appt with nurse at my surgery.I went for a diabetic check.Amongst other things she had to do a blood pressure check and blood tests and there is a note on my file by the doctor that any future blood tests and pressure tests are to be done on my right arm from now on as what pjrant says is quite correct.

You should also wear some kind of info tag so in the case of an emergency then people know you have lymphoedema.Not 100% sure why that is but I assume it is for the same reason.

Crusee

XX

[completely-zero654 in reply to Crusee]

Thanks Crusee. Just hope my doctor has done the same as he seems "busy" most of the time, lucky if you get your 10 mins with him.

You have a very understanding doctor. Thank you for your help. xx.

[Crusee in reply to completely-zero654]

2 of the elder Drs at my practice retired at roughly the same time and a new dr has come into the practice.I am soooo grateful. He is very thorough,has lots of new ideas about medicine and above all he is good looking-what's not to like?

Only problem is he doesn't stick to his 10 mins which us great when he's dealing with you as you have all the time you need, but when you have an appt at 11.10 and don't get to see him until 11.45 that's not so great.But I am Just being selfish now - he spends as much time with each patient as they need so you just have to be patient.

Hope all goes well for you.

Crusee

XX

[completely-zero654 in reply to Crusee]

Hello Crusee, Just wanted to say it is the same at our surgery. You have to make an appointment but never ever get seen on time.

I too wish you good health, take care xxx

[Jennymary]

Hi, I have a lymphodema alert card which I carry in my purse, it was sent to me when I joined the LSN

[Rebec]

I need to wear a special sleeve over the lymohoedema arm so no doctor or nurse would be able to inject, take BP, etc. but also got a tag/pendant that alerts everyone that extra care should be taken over the affected arm. You can also get a bracelet if you prefer on which the word Lymohoedema appears. It's very important as the last thing you need is an infection.

[completely-zero654 in reply to Rebec]

Morning Rebec, I have several bouts of cellulitis throughout the year. My feet are in a shocking state, eg: all shades of mauve, red browney colour. My heels are so rough and cracked (both feet) they are just like a sheet of the rough grade of sandpaper. No creams seem to work, I can not look after them as I should because I have an inoperable back condition (arthritis) which prevents me looking after my feet as I should. My husband, I know is fed up with it although he would do anything for me and does help out with everything (he is my paid full time carer).

Thank you for replying to me. xx

[Rebec in reply to completely-zero654]

I was told that vit E improves the skin. Maybe read about it. It might be good not only to take it by mouth, but try and see if it's not included in certain creams too. Maybe the blood circulation on your legs will improve also if you can exercise them on kind of moving steps (it's advertised for people to use in long flights). Hope this kind of exercise could also make a difference.

[rother in reply to Rebec]

Vit a and vit C are vital for great skin as it helps the skin regenerate.

[Rebec in reply to rother]

To tell you the truth, unless one suffers from an ailment that involves the skin too, good skin is inherited. How I wish I inherited my mother's skin who, until her death at almost 99, has smooth skin without any blemishes.

[Whitesugar in reply to completely-zero654]

Ask your GP for a prescription for Dermatonics Once a Day. You should very quickly see an improvement in cracked skin on the feet. Multiple episodes of cellulitis in Lymphoedema should be managed with a special regime of antibiotics, sometimes for months. Again, ask your doctor to look it up on the British Lymphology Society website or print it out yourself, if you can, and take it to the GP. The Lymphodema Support Network will send you their leaflet on Cellulitis if you are a member.

[pushkin in reply to completely-zero654]

Coconut oil my friend, two and one half tablespoons each day taken however you would like. Not only will it deal to your feet problems it will deal with your anything problems and it is surely God's special gift to us. Through taking internally you will very quickly feel and notice the benefit and will also notice how soft and lovely your hair and skin hasbecome

[HeidiK in reply to pushkin]

Hi Pushkin,

2.5 tablespoons or teaspoons? How do you usually take it? Does it not promote diarrhoea? I'd like to try what you've said but I'm worried about my bowels as I don't have good control due to other health issues.

Take care.

[pushkin in reply to HeidiK]

Good morning from a very warm and sunny Ukraine.

The answer to your question is two and a half tablespoons a day like in smoothies. as a spread INSTEAD of butter etc. on veggies, by itself. Spread throughout the day/ It is essential to try and buy the best you can affird it really will be of the greatest benefit to you. Look for 100% Organic Virgin cold pressed cold pressed coconut oil, pref erably from Sri Lanka (Ceylon) or Philippines. I would suggest you put Coconut oil UK into your computer and it will come up with a very good supplier and if my memory serves me rightly this company delivers free of charge.

I have never heard of anyone having problems with reactions .

As always you can start on a smaller amount ...say one tablespoon spread throught the day and see how you go. My feeling is that you will quickly adapt to it and the benefits start to be felt very quickly. Coconut oil is really God's gift.

As for me....I just lick it off the spoon! Coconut oil is the ONLY oil I use It is also absolutely delicious on bread not too much bread.

Blesssings in your true health quest I would like to hear how you go.

[HeidiK in reply to pushkin]

Thank you for your explaination.

Take care.

[pushkin in reply to HeidiK]

PLEASE try it ,, even very slowly,

[HeidiK in reply to pushkin]

I will do.

Thank you for your encouragement.

[pushkin in reply to HeidiK]

Keep on keeping on

[HeidiK in reply to pushkin]

You too 😊

[pushkin in reply to HeidiK]

The healing of your feet will come from within. Dump the chemicals they are a burden on your body. If you want to give your feet some burther help investigate a naatural horsechestnut combination ointment at real healthfoof pharmacy and remember.....These things work but only if you use the EVERYDAY!!

[kmenurse]

You should always notify medical staff because by using the effected extremity for B/P's, needle punchers it can make the lymphadema worse or if it's under control make it flare up... What happens is lymph fluid will move to the area to heal the injury created by the needle punchers or B/P. And with no lymph nodes to circulate, the fluid will be trapped. Also more except able to infection. Hope this helps.