Just joined today! Have Lymphoedema, Lymphedema, Overactive Bladder & Fecal Incontinence. Have an Osteopath for my Primary Care Physician, fortunately. Have a Urogynecologist too!! Would like to get a Lymphedema Physical Therapist to go to now that I know I have Lymphoedema. It's a drag having these diseases & conditions all at the same time. I'm sure there are others here that are battling the same issues. Are you out there?
Hi, I'm Laurelin & I'm new to the LSN!: Just joined... - LSN
Hi Laurelin and welcome! I am sure you will find others with similar experiences and of course we all share the joy of having lymphodema! There’s lots of information and tips on managing it on here, I have learned a lot since joining x
Hi Laurelin - welcome to the site. Have you found similar sites on your side of The Pond? The LSN is based in London, so our care is managed a bit differently - there are many members here who know exactly what you are talking about.Have you heard of LANA - you may be able to find a LPT through them?
So on a search I would say "Lymphoedema Support Network help in USA"?
Good afternoon LaurelinMy names Melanie I have just read your message and I do understand I myself have M.S and chronic ostioarthritis and was also diagnosed with lymphedema just nearly 2 years ago it is a real struggle like you said battling so many conditions I also have incontinence trouble which I think is due to the M.S . I do hope you get things sorted I just wanted you to know you aren't alone feeling as you do.
All the very best
Okay, but want Lymphoedema, not Lymphedema.
Just had my first physical therapy treatment with Kristen, a Lymphedema Physical Therapist. She verified that I have Lymphedema in my abdomen, genitalia, both legs & feet. Showed me how to manual drainage for abdomen, both legs, feet. Told me to get referral to Pelvic Floor P.T. Sammi in particular. She is knowledgeable about Lymphedema in genitalia. So now have appts. with Kristen and Sammi coming up. Am to do manual drainage either 1st thing in morning before I put on compression stockings or at night after I take off stockings. Think I prefer to do drainage in morning. Feel like now I'm getting somewhere!
Hello Laurelin, great news about your MLD.I do mine every morning too. I've also found an amazing Physio who is helping me with the Arthritis, he also has knowledge of Lymphoedema. He has given me lots of exercises to do myself at home. Which I am doing, so very difficult at first though.
I still have pain but I am getting my mobility back.
It's a good feeling when something is happening.