Hi, I have been reading the comments and contributions here for some time, but now feel I should introduce myself and interact with everyone.
I had haemolytic Disease of the new borne in 1946. I was given a complete blood transfusion and the 7th time of trying-it worked. The trauma to the lymph capillaries cased a swelling straight away. When I was three years old, my mother, who had lost 4 babies between my brother and I, sent me to dance school. The activity, 5 times a week, must have helped the lymph find a new path and I looked quite normal until I was about 24 when the legs began to noticeably thicken. I gave up my stage career and taught theatre dance until I was 69. I have now had to limit my teaching to Line Dance and other academic subjects due to the increase in the size of my legs and the Arthritis in hips and knees. At 68 I had a hip replacement and at 70 I am waiting to be admitted for the other hip replacement which will help relieve the pain: dragging heavy legs with joint arthritis and asthma is very tiring. I don't take pain killers as I want to avoid eroding the gut lining. Last year I was at last referred to the Lymphodema Clinic; the nurse was amazed that I had not been referred years ago.
However, I now have compression tights; largest size, but they take ages to put on and are painful to remove. I persevere. What puzzles me is I am measured, but can only have the tights in the largest size commercially produced; so they are not 'made to measure'. Can I get a pass to use a private swimming pool where I won't feel out of place showing my now unsightly legs? I look OK with trousers or a long skirt but bathing cozzies offer no disguise!