Hi! I have lymphodema on right whole leg and left only up to the knee. I wear all day 4th compression class stockings and when I take them off in the evening and take a shower my right foot gets soooo hot, red and it hurts very much. It stays for half an hour or longer and then everything is ok, but I'm affraid it's going to be worse within years. Do you have such trouble as well? What do you do then?
Honestly I'm frightened. I already has had the miscrosurgery in Italy, I'm using lympha press dwice a day- it's 3 hours, I'm wearing 4th compression class and my leg still swells during the day. Of course I keep it really slim due to taking care so much, but it won't get better, will it?
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Aleksleg
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Hey! I have the same . I think it is from having your leg with compression all day and then take it away the leg starts to swell and have bad circulation so you get pressure and then this strange feeling and color. That is why i take showers just before going to bed , really short and with almost cold water. I do scrub the leg (not with a product but a glove) gently from down to upper region with circular movement . After that i go to bed , put on some gel , elevate the legs and do self mld and deap breathing. I make it a ritual so it is normal. Do not despair mine aggrevates during years too but hope is on the way. Please check my post ' Hope' a bit earlier!! I believe there is coming light at the end of the tunnel and we will benefit soon...
Hey! I have the same . I think it is from having your leg with compression all day and then take it away the leg starts to swell and have bad circulation so you get pressure and then this strange feeling and color. That is why i take showers just before going to bed , really short and with almost cold water. I do scrub the leg (not with a product but a glove) gently from down to upper region with circular movement . After that i go to bed , put on some gel , elevate the legs and do self mld and deap breathing. I make it a ritual so it is normal. Do not despair mine aggrevates during years too but hope is on the way. Please check my post ' Hope' a bit earlier!! I believe there is coming light at the end of the tunnel and we will benefit soon...
lymphaticresearch.org is organising a walk on brooklyn bridge to raise money and awareness. It is in US but i managed to set up a team from abroad too ti
Android sucks all money goes to research . They have 45 000 dollar so far. Even it is in US we will benefit from research worldwide. That is why i set up a team from abroad to collect some money. The walk is this weekend. Lets join hands donate and speed up the research!!!
Www.lymphaticresearch.org is organising a walk on brooklyn bridge on 14 september to raise awareness and money. So far they have collected 45 000 dollar which is totally for research!!! I know it is in US but i too have managed to set up a virtual team and collect some money. We will benefit from this even when it is in US so lets donate and speed up research program!!!
I'm sooo sorry for those 5 months, but i've had some problems. Thank you so much for your reply. I think we have to find our way of dealing with lymphedema since every case is diffrent and there is no perfect remedy.
I had to stop the wrapping as te pain afterwards was unbearable also I wear support stockings as they are not as tight as the compression ones. I try to have my legs massaged lightly as they always are painful to the touch can anyone suggest a cream that would alleviate the pain?
Hello Alecsleg! My mother has lymphedema on left leg aprox from 15 years and the leg is very swollen. Please tell me, are you happy with the results of surgery? what was the cost of the surgery? the leg circumference was reduced? how much? thank you!
Hi! Sorry for such delay. No, I'm not satisfied with results of this surgery. There is a diffrence between circuts before and after surgery (theoretically
its better) but my leg is swelling faster and it's not as easy as it used to be to get rid of it despide wearing those 4th class stockings and having massages dwice a day.
Plus I have a hudge scar and 3 blue marks from a contrast. And really often half of my thigh is paintful
If you have more questions write here- aleksleg@o2.pl - I promise to answer asap, not like here.
which stage did you have? 2B fibrosis problem still
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do you have liposuction ?
little bit easier then
but granzow campisi becker if anyone of those three dont help you lymphology is suck so far
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it works even you have redness is it fibrosis legs so you dont have overrall circulation due to this fibrossis tisue so the besti is leg without fibrosis
its related to damage nerves this burning feet as I have had operation and the removed a a lot of damage nerve and tried to mend it by moving some new nerve from behind my ankle but it did not work, now have burnin feet,
when I'm in the shower that's when I get the pain in my feet when the water hits them it's like a lot of little needles are being fired on them I thought I was an oddity as I get the most silliest things happen to me.When this appointment comes in they are going to think I'm a Nutter lol
Normal after 1 year we will see later but campisi is the best in the earliest stages late stages is difficult to treat
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so it is normal. Do not despair mine aggrevates during years too but hope is on the way. Please check my post ' Hope' a bit earlier!! I believe there is coming light at the end of the tunnel and we will benefit soon... 
Need pneumatic sequential pump for secondary lymphedema. But what kind? 
Should I stop compression treatment now that my leg has reduced in size so much?
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