Should I stop compression treatment now that my leg has reduced in size so much?

Hi,

As tempting as it is to leave them off it is best to wear them daily & particularly as you have got used to them. I also wear full compression hosiery on both legs - and working in the Middle East it is often uncomfortable but I persist. Occassionally I allow myself the luxury to leave them off for a few hours on a weekend morning - to let the air circulate and give the feet and legs a good soaking with moisturisers - but within a few hours I can see the feet begin to swell again - so on they go again and keep the legs raised to offset the price I paid.

Be happy you made such a great improvement and take care to maintain it.

Christo.

I wear compression stockings on both legs..and will do so for life...my left leg is basically back to normal size ...but I will continue wearing the compression stockings cos as there is no cure for lymphoedema the lymph will build up and my legs will swell again..and then I will be more prone to infection...I am just not willing to even try it without compression stockings even for a day...

Other than wearing the compression stockings I do a daily walk between 20 to 60 minutes depending on time constraints and whether I incorporate it with shopping etc..my right leg hasn't got down to near normal as yet.....and I also have lipoedema and my thighs are still quite big even though I have lost 11 kg since beginning of November....seems I havent lost anything much in the thigh area at all...so yes even though my lower legs have gone down in size ..like you I still have to wear the wide leg capris or trousers to accommodate my thighs..GRRR...I have had the lymphoedema for at least 10 years along with lipodermatosclerosis...the lipodermatosclerosis was diagnosed in Feb 2009 by a dermatologist but I was given nothing on how to deal with it so carried on not realising by leaving it is as it was it was progressively getting worse....I had 2 biopsies ..one in 2003 and one in 2008 ...the last one should have been a huge indicator towards lymphoedema as the biopsy site oozed whitish yellow fluid for 5 days...hmmm yet it wasn't picked up ...so another few years passed til July last year when I got a bad infection in both legs ...so had the District Nurse come and dress them...she actually referred me to the Lymphoedema Clinic and I was finally diagnosed with Lipolymphoedema...and Lipodermatosclerosis in October last year ..and compression stockings were prescribed ..which I got in late November .I started waling daily at the beginning of November....and by January I had gone down a size in stockings so got new ones in February.

Looking back...by rights the dermatologist should have gotten me into stockings when she diagnosed me in Feb 2009 cos the compression stockings are also used for lipodermatosclerosis so I discovered a little while ago

So it has been a matter of 10 years to get to a definite diagnosis and treatment..

its nice to know your treatment worked, its tempting to leave compression garments off but its the compression which prevents the lymphodema causing the limbs to swell again, Personally i would love to leave mine off both my legs, did it once when i had flu oh what a mistake, my legs came up quickly and i had to have bandages on for 3 days, so i wont leave mine off i know its not always nice but we dont have a choice.

Hi River83, if you saw my other post you're realise my ankle is fine but my brain is fried.

To answer your question about stocking or no stockings I think it's very encouraging that you've managed to get your leg back to normal, or very close. Could you reduce how often you wear your stockings? I would say if you have any swelling left then think twice before not wearing them. If you do experiment I think you should monitor them closely and carry your stocking with you so you can put them back on again if you leg shows signs of swelling.

Hullo. I do what you suggest all the time. I have inherited lymphodema in one leg. I wear

half length activa socks. They are brilliant - the best. Soon as my leg is better I leave them off.

Atleast 2 to 3 days a week. When it swells up, I put them on again. No problem.

Best wishes

I have lipolymphoedema and wear full length compression stockings every day. I have occasionally left them off for a day, but only if I've been too ill to even get out of bed. I wouldn't recommend leaving your stockings off in the normal course of things, but perhaps you should speak to your healthcare specialist about it.

no make compression your best friend