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Need pneumatic sequential pump for secondary lymphedema. But what kind?

I'm 76, female. Have secondary Lymphedema following radical cystectomy November 2017 when 28 lymphnodes removed. Immediate swelling in left leg, thigh and abdomen, then right leg in May. Compression garments don't feel right over the stoma/ileostomy. Have hernia there as well. lSo I'm told to get a pneumatic pump with sequential compression and at least three chambers and two legs, etc. How can I find such a pump? What kind does anyone have experience with? Do you use it regularly? What would you recommend? Thanks for any help. I'm still lost in LymphLand so appreciate getting your comments!

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Hi

I use lympha pants - compression uk

They are good people to deal with and years after we bought it remember and help with advice if needed

X

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Thank you. I will look for their website. However, I should have said I am in rural US, so wish I would find a company on this side of the pond. The continuing interactions you've had are what I would like. Thanks again!

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Lympha Press is the biggest provider in the USA. You will find them at lympha-press.com

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Dear naominorthenellis,

Thank you very much for your referral to Lympha Press. I have submitted a request that one of their dealers be in touch with me. The Lympha pants looks to be what I need. Do you recommend one or another of the machines? Thanks again!

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Have you been advised to invest in one by your treating physician or lymphoedema clinic? Have you used one at a clinic? There are a number on the market, and they range in price hugely. Cheap is not an option!

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Yes, Lynora. My primary physician here in western Montana decided I need a pump in consultation with the Certified Lymphedema Therapist I've been seeing here since January. As I'm in the US, I don't know about any lymphedema clinic where I could try one. Maybe I need to go to a larger city just for that purpose. Would surely like to try before buying. Medicare may pay toward it, so we are submittinh the documentation they require. I'll need to pick up the cost myself if they don't help. One the therapist found is $1,700. So I see cheap isn't able to be an option. Thanks for your interest!!

~Mary Kay

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This site is based in London, & I have limited knowledge of the North American market! We have several members based your side of the Pond - they may have some ideas!

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I have been using a Tactile pump for over a year; they are based in Minnesota - tactilemedical.com/. A representative came to my home, demonstrated how it works and measured me for the pump. I received units for both legs, although I only use it for one. I've been really pleased with the results, although I am now pumping for 2 hours daily. Medicare will pay, but the documentation requires a specific diagnosis, such as familial lymphedema.

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Hi from Ireland... don’t know what’s available for you in America, but I’m using a full trouser garment which encloses the body from above the bellybutton down to the toes & pump. Use it most nights, seranova brand & have found it very good. Have lymphodeema from the waist down & would wonder if I’d have managed the abdominal lymphodeema as well with only leg attachments for the pump.... the pump moves large amounts of fluid for me & I wonder if I hadn’t the full trouser garment, how much of it would have stayed abdominally, despite doing additional mld. I have spinal issues & needed to decrease the pump pressure because Of pain, you might have to if you get a full trouser garment, due to the stoma. Best of luck. Megs

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I have lymphedema (both legs & torso) from hight doses of radiation for stage 4 gastric CA. Use the FlexTouch pump. Medicare covered this. It's a pain to get on your legs. Does it help? I don't know. My left leg which is worse than the right has sill gotten larger but not a lot so perhpas this is helping to keep it in line. I needed a scrip from my MD. I'm in the USA

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They have a range of pumps and garments and they will be able to advise which is the best pump and garment for you and your specific condition taking into account all of your medical needs. I am afraid I can't advise you from here in the UK. Good Luck, its brilliant! NNE

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I love my Flexi Touch. It’s amazing and Mayo also agrees its a great company. It has several chambers and works well.

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Thanks to all of you who replied with information about the different pumps you use. Have had some computer problems, so am just now getting back to you. I have requested a dealer to call me regarding the Lympha-Pants. Hasn't happened yet... And I will be trying to see if I can get a trial somewhere of the it, the Flexi-Touch, and Tactile pump. Perhaps I am too far away from a major city to get a call back, but I'll keep trying. Thanks again.

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