I am new to this world and could do with some advice regarding how to get a diagnosis.
In short my story is this: I woke up three weeks ago with a very swollen foot for no reason. My GP referred me to an orthopaedic who suspected I could have a stress fracture. An MRI ruled out the possibility of a fracture or muscular injury of any kind and the report noted there is just “diffuse soft tissue swelling”. This orthopaedic then referred me to a vascular surgeon who was completely useless and blamed my hormones (!) Yes, hard to believe but true: he said my very swollen left foot could be related to my hormones as I am peri-menopausal.
Is there anything a male doctor isn’t prepared to put down to menopause?
As my foot hasn’t improved, I went to see a Manual Lymphatic Drainage therapist who specialises in lymphedema for an opinion. She is convinced I have primary lymphedema and believes I should have a lymphoscintigraphy test done to confirm this and get an idea of the extent of the problem.
Where to go from here? My GP really is completely unhelpful and extracting a referral out of him requires a battle. He will claim I have already been seen by a vascular surgeon who found nothing wrong with me (other than the peri-menopause). Does anyone know whether a GP can refer directly to a lymphoscintigraphy test, or does this have to come from a specialist?
I’m contemplating the option of writing to the vascular surgeon who saw me, explain I have found no science to back up the theory about how the menopause could result in one swollen foot, mention a therapist who specialises in this area believes I have lymphedema and ask him to please organise a referral… but I don´t know whether this would work as Drs don´t tend to like patients who disagree… Has anyone had experience of a similar situation, a vascular surgeon not recognising lymphedema?
If anyone has any ideas about the right path to be referred to a lymphoscintigraphy I would be grateful for advice. When I try to google things out there, I am finding that most of the information and services available tends to focus on secondary lymphedema related to other conditions, not so much about primary lymphedema.