I first discovered I had Lymphedema when I was 12 years old. Most of my life I thought it was due to my twisting my leg. The doctors did not really know much in the 70's. It wasn't until I was in my 40's that I discovered I had an Inherited disease. Now after developing a Uterine Fibroid, it has affected my leg the way it never did through out my life. My leg is 3 times the size it should be. I too hope to have the SAPL surgery in the future.