Anyone cured or in remission from ITP? - ITP Support Assoc...

ITP Support Association

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Anyone cured or in remission from ITP?

CDmom profile image
5 Replies

Has anyone tried and been helped by parasite destroying meds, homeopathics, and or Rife, etc?

Thanks,

Cindy

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CDmom profile image
CDmom
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5 Replies
Eileen-Emily profile image
Eileen-Emily

Hi fast answer I don’t know . However when I attend my monthly haematology clinic my reading hovers around 103 and at that stage I inject 30mcg of Romiplostin. The level of my injections has been reducing over the last 2 years they originally started at 210mcg every 3 weeks 4 years ago and I can only attribute the change to 2 years ago I was prescribed Bezafibrate to help stabilise my liver disease PBC. If eventually the level of Romiplostin injections are reduced to zero and I manage to hold on to a level of Platelets 100 without any assistance is it a cure or remission I don’t know but I will ask when I next see my Haematologist at my appointment in August. Good luck CDmom I hope the information is helpful to you.

CDmom profile image
CDmom in reply to Eileen-Emily

Hi Eileen-Emily,Thanks for sharing your story. I am glad you are doing well.

Best,

Cindy

Zaff profile image
Zaff in reply to Eileen-Emily

I have been in remission about 3 years after a course of Ritubimax but have been advised it could come back at any time

Neolicius profile image
Neolicius

Hi ,yes I have been cured through Mabthera taken through a drip feed for 8 months now.I took the drip in December 2020.My plates have been over 200 since the drip.

CDmom profile image
CDmom in reply to Neolicius

Hi Neolicius,I am so glad you are doing well. That is great info. Thanks for sharing your story.

Best,

Cindy

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