ITP in India

[narendra11]

wish to know the experiences on symptoms , management of ITP in india? may share your experiences for mutual benefits..

we may discuss /quote

1 physical symptoms

2 control symptoms medicines

3 psychological symptoms and control

etc...Cheers

narendra ,Delhi

[battuss]

Hi Narendra, my wife has been with ITP for past 3 years. She has been medication through various steroids and twice hospitalized.

However, recently she started administering Papaya leaf juice along with her daily medication. She is able to maintain her platelet count with papaya leaf juice, even though the dosage of steroids are reduced.

So, you may try with papaya leaf juice and see if it works for you.

[Padram in reply to battuss]

Hi Batuss, does your wife take steroids too? If so, how much? Is it only a maintenance dose? How old is she ? Does her count fall when she stops papaya leaf juice? Because that's what happened to me. I am at present trying transfer factor. After 2 weeks, my count is stable at 50000. Will post my count next week when I complete 1 month of TF.

[battuss in reply to Padram]

yes she is still on steroids..omnocortil 2.5 every alternate day right now. We just recently started papaya leaf extract, but yes we stopped for 1 week and the platelet count dropped.

At the moment she is taking papaya leaf extract every alternate day.

[narendra11 in reply to battuss]

thanks, any specific method for intake? i am on steroids , its stable but with of course side effects.

[mahendra_nagraj in reply to battuss]

Hi battuss,

Can you confirm if your wife still continues with papaya leaf juice and does it still work for her?

Has she stopped taking streroids now?

My wife continues on Nplate (Romiplatin) injection for last 3 years and now wants to be in a situation that she does not have to take these injections and hence the query.

With regards,

M N Nagraj

[Padram]

Hi Narendra, have ITP for a year. Physical symptoms were extreme tiredness, bleeding gums, bruises on legs, blood in urine and stool. Count then was 24000.

With steroid count increased to 150000. But reduced drastically once med was tapered . Had mind fog, bad dreams, sometimes no sleep, had difficulties with hand eye coordination,- during steroid phase.

Have little memory of what happened last year.

Tried papaya leaf juice - count increased, but reduced when I stopped taking the juice.

Trying Transfer Factor for the past 3 weeks. After 2weeks count was 50000. Will post count again next week when I shall complete 1 month of TF.

Gum bleeding seems to have reduced though not stopped. But I don't feel as tired as I used to.

What is your experience?

[tennissenior]

Dear Narendra,

I have read the green vegetables may hep raise platelets. I can't eat them because I am on Coumadin. Once, my platelet count went down to 32,000, and I was on a massive dose of steroids. It did bring them up to 100, but it was only temporary. Try natural remedies if you can - try the papaya, green vegetables, etc. Much better than taking steroids, which can cause other issues. ITP is tough. I have it too as a result of SLE.

[Sram in reply to tennissenior]

Hi Narendra,

I have had ITP for a year now. My count went as low as 2000 and then I was on various types of medication like steroids, eltrombopag. But everytime medicines are tapered my platelets fall. Currently I am on Dapsone and my count is about 40,000. I am on papaya leaf extract also

[narendra11 in reply to Sram]

noted,keep sharing

[Padram]

I had written about Transfer Factor. Unfortunately my platelets have fallen to 30000. Obviously it has boosted my immune system . Now I am back to omnacortil, as I cannot risk it falling further. We should understand that unless our immune system is suppressed, platelets will keep falling. Thought I should inform about non efficacy of TF for ITP.

[Viju1983]

Hi Narendra,

Does papaya juice work in chronic ITP, is someone going with Ayurvedic treatment doe that help.