I hope it is ok to post this here. I'm just looking for another opinion about how to deal with my daughter's school about her ITP and I thought this would be a good place.
My daughter is 8 and has had ITP since she was a toddler. Apart from one count of 34, her count has always been 20 or less and sometimes in single figures.
She has a care plan at school and it says she must not participate in contact or damgerous sports. Last year a newsletter said her class would be doing rugby. I spoke to the teacher to say that she couldn't do it and he told me that they weren't playing a game, they were just doing rugby skills ie throwing a ball to each other standing in a line and that it is totally safe and no reason why my daughter could not do it. I trusted him and let her do it.
In September this year we had the same letter. I didn't speak to the teacher as I had already spoken to him last time and he knows about my daughter and her care plan as he taught her last year.
After a couple of sessions all I have heard from my daughter and her friends is how many people are injured during the lesson and that it is a proper game and really rough and dangerous.
My daughter is moving school very soon as I am not impressed with this teacher at all for other reasons. However, I felt I still needed to tell him that I did not want her joining in with rugby. When I spoke to him he looked at me like I was stupid, told me he couldn't understand my issue, but agreed. I got the impression his thoughts were "whatever, I don't really care anymore".
Today was the rugby class. My daughter asked the TA what she should do as she couldn't do rugby. The TA called across the class to ask the teacher. The teacher then called across the class so my daughter and everyone else could hear and said " I don't know. For some reason Hannah is not allowed to play". My daughter said he said it in a really mean way and pulled a face.
This has really annoyed me as he obviously isn't taking her careplan seriously and either doesn't understand or care about the consequences.
I am quite cross about this and I'm tempted to go and speak to him and explain clearly that her platelet count is low enough to cause internal bleeding without an injury and explain to him how serious internal bleeding is. Or would you just leave it?