Joint pain: Hi I haven't posted for a... - ITP Support Assoc...

ITP Support Association

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Joint pain

Castle155 profile image
7 Replies

Hi I haven't posted for a very long time, baicly I'm having a rubbish time with joint pain all over my body I take vitamins, & cod liver oil. Does anybody take anything that actually helps? Thanks for any advice Steph

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Castle155 profile image
Castle155
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7 Replies
BellaMo profile image
BellaMo

Hi, I too suffered from joint pain. Are you taking steroids/tapering or used to take? Anything else you're taking?

Northlea profile image
Northlea in reply toBellaMo

Hi Castle I also suffer from joint and muscle pain so I hope you don't mind me jumping in here.

Hi Bellamo, I have recently taken myself off 25mg Prednisone (cold turkey.... no tapering) after more than 1 year on varying dosage sometimes up to 60mg per day. Do you have experience of coming off steroids.

Kind Rgds

Castle155 profile image
Castle155 in reply toBellaMo

Hi I inject romiplostin once a wk which gives me awful itching sleepless nights and tiredness all the time.

JuciyJ profile image
JuciyJ

I have joint point and muscle pain and soreness. By the end of the day working on my feet for 4 to 5 hours I am useless by tbe time I get home. I tapered off prednisone back in Nov and since Sept I have been on Romoplastin woth weekly shots. My hemoc Dr saod that was the reason but sometimes I wonder.

Doris61 profile image
Doris61 in reply toJuciyJ

For those of you who have joint pain, I have finely found something that really helps me. cbd-clinic.eu/en/o/cbd-clin... If you are subject to drug test this will not give you a dirty drug test. There is NO THC in it. It is not cheap for level 4 it is around $55.00. I just bought the Level 5 for $95.00 but I think the Level 4 is just as good. It has made a difference in me sleeping or not. I take a hot shower and put it on after I shower and it truely makes a difference.

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Doris61 profile image
Doris61

For those of you who have joint pain, I have finely found something that really helps me. cbd-clinic.eu/en/o/cbd-clin... If you are subject to drug test this will not give you a dirty drug test. There is NO THC in it. It is not cheap for level 4 it is around $55.00. I just bought the Level 5 for $95.00 but I think the Level 4 is just as good. It has made a difference in me sleeping or not. I take a hot shower and put it on after I shower and it truely makes a difference.

ITPAffecty profile image
ITPAffecty

In the below group which is about following AIP diet to cure Auto immune conditions, many people have Joint pains/RA which they are managing just with diet. See if it helps you.

facebook.com/groups/aipdiet...

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