My 2 year old son was diagnosed with ITP six months ago but I believe he has been suffering from this since he was 1 years old. His platetlet range is between 5-12. He had a course of steroids 3 months ago but in his case it was unsuccessful. He has now been scheduled for a bone marrow biopsy in January 2018.
Just wanted to ask if other parents have gone through the biopsy with their child? How did your child respond? Is it as bad as i am imagining it to be? I feel very worried and dreading the whole thing.
Would like to hear about your experiences
Thank you
Written by
Shabana_Kauser
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I had a Bone marrow biopsy and would strongly recommend that you ask your Dr if it is possible to do the procedure whilst your child is under anaesthetic. I am supposed to go for my second biopsy in 2018 and I have chosen to have the procedure under anaesthetic because of the great discomfort it causes and I am an adult so please don't let them do the procedure whilst awake if at all possible. Other than that once the procedure is complete there is reduced discomfort. Please consult your Dr for further information.
I have had 2 bone marrow biopsies, and whilst it wasn’t painful, I endured great discomfort. I am sure a small child would find the experience very frightening, and probably painful, so like a previous post I would look into the possibility of having it done under general anaesthetic. Hope all goes well.
My son will be under a general anaesthetic thankfully. I'm just unsure about what to expect once it has worn off. On a normal day I have noticed an increase in mood swings and the fact that he becomes overly emotional when his platelets are low..so I am very nervous as to how he will be following the procedure. Praying it goes well
My daughter had one taken from her spine, She was given full anaesthetic to put her to sleep. Afterwards I was amazed at how small the mark was on the site where they had taken the biopsy. I was expecting to find typical itp bruising which tends to be spectacular! The whole thing was very quick and she recovered well. Only down side to it was that she is sensitive to anaesthetic and it makes her sick even with anti sickness meds! Having the biopsy is a really good thing. Hope this helps you! 😊
My son's bone marrow biopsy was not as straight forward as we had hoped but they eventually got a sample. We have another week to wait before we get the results.
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Anyone else have a child with ITP and if so, what is your experience?
